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Diagnosis nightmare

maaya

Hi

I just had a private assessment in London which said whilst I scored highly on the ADOS, my mother completed the ADI-R and it came back below the cut off so they said my problems were more due to anxiety and depression not aspergers.  I hated the assessment as the psychiatrist didnt seem interested in what I had to say and consequently I didnt get to explain much about the things i find difficult.  More time was spent with my mother (who is 72) and my husband.  I find it hard to accept an assessment which heavily relies on retrospective information from someone who failed to see a lot of my issues as a child anyway and would always tell me to "forget about it" if an issue arose.

I am wondering if anyone else has experienced this problem?  Has anyone had a second assessment?  I am wondering what the value of this would be as I wouldnt want my mother involved.

I would be very grateful for your thoughts

maaya

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  • Former Member
    Former Member

    Hi Maaya,

    Was the psychiatrist a specialist in autism disorders or a general psychiatrist? Why do you need a diagnosis? Who is paying for the private diagnosis (i.e. is it your own money or your employers or health insurance?)

    I don't understand why they would rely very heavily on the unreliable witness observations of your 72 year old mother or your husband. Neither will have standardised responses to the questions. These assessments should be used as guidelines in the diagnosis process and should not be used as black and white tests with cutoff points that separate a diagnosis from an all clear.

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  • Former Member
    Former Member

    Hi Maaya,

    Was the psychiatrist a specialist in autism disorders or a general psychiatrist? Why do you need a diagnosis? Who is paying for the private diagnosis (i.e. is it your own money or your employers or health insurance?)

    I don't understand why they would rely very heavily on the unreliable witness observations of your 72 year old mother or your husband. Neither will have standardised responses to the questions. These assessments should be used as guidelines in the diagnosis process and should not be used as black and white tests with cutoff points that separate a diagnosis from an all clear.

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