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The dreaded Hospital Experience

Zazzy

Hi all,

I’m hoping someone can give some tips re being admitted to an and e, (amAuADHD). I always come out worse than I went in! Have had a few Strokes in the last four years, and collapsed in the high street a few days ago. (Everyone walked by of course … very sad!). Managed to call an ambulance but was dreading it … as our local hospital is a nightmare and I knew what was awaiting me! The paramedics said they had to take me in, so I decided to go for it. Let’s just say if anyone has watched ‘Fawlty Towers’ on TV … our hospital is very similar … sigh … Confused 

There was a bully ‘in charge’ of the dept, they weren’t ‘busy’, and there were empty bays. I was left on a hard trolley in the centre of the room by the COMPUTERS AND ADMIN STAFF, the sensory overload was a nightmare, it’s on my records I have Autism and need ‘Reasonable Adjustments’. But no, I was left out in the open, with zero dignity, and a junior doctor came and ‘examined’ me many hours after the episode (so any signs of a TIA would have disappeared by then … my abdomen exposed to the whole ward and staff along with my personal info. Oh, and once again, I wasn’t ‘triaged’ or given a wrist id band for four/five hours when I pointed it out! They wouldn’t do any scans and I was discharged, still unable to walk properly, headache had lessened slightly but I was worried as it was c.1...00am when I got back (£60.00 taxi) that I had to pay for. Zero support at home.

Hospitals seem to have lost their ‘compassion’, and I now face having to make a complaint on monday about the bully and the lack of treatment.

V hard to deal with, when you have Autism. I just managed to hang on to see this young dr (who was shaking! I think I must have been his first patient Scream … as I kept wanting to just run out of t

as I was being ignored and was sensory overwhelmed, I nearly ran (well, hobbled) out of the dept! I wish I had in hindsight. Still ill, gp useless, scared to call paramedics as I’d have to go through the same thing again.

Thinking of moving to another part of the country where a) better nhs, b)People with Autism are treated with more respect …. any ideas where?

ZazzySparkles

Parents

  • I'm really sorry to hear that. 

    I had a similar experience just a few days back and it could have turned very serious. For reference, I'm 24 and have AuDHD. 

    Blacked out during an exam, followed by a severe headache, neck stiffness, and a sensation that I was getting increasingly disoriented once I got home. Moving my neck actually became physically painful. I was told to go to A&E Coventry. 

    When I later asked how serious my symptoms were after I had walked out of A&E after it had ground to a total standstill (people were waiting 6 hours to be seen!), I got properly scared because I heard phrases like "possible brain bleed" and "medical emergency" more often than I'd like. 

    I was triaged as a 4/5 and labelled 'low alert', and was later told I should have been a 2 or 3 based on my descriptions alone and told if it happened again I should call 999 immediately. 

    Perhaps unsurprisingly, I completely failed the next and final exam (although I feel almost everyone else did as well) despite extreme levels of preparation. 

    And this is just happening all over the country- my grandmother was finally offered an ultrasound appointment by the NHS when she had already died from cancer, I remember sitting in A&E for hours with a blood pressure over 180 at 16 years old...

    Really disappointing to see what is happening to this service. Used to be much better. 

Reply

  • I'm really sorry to hear that. 

    I had a similar experience just a few days back and it could have turned very serious. For reference, I'm 24 and have AuDHD. 

    Blacked out during an exam, followed by a severe headache, neck stiffness, and a sensation that I was getting increasingly disoriented once I got home. Moving my neck actually became physically painful. I was told to go to A&E Coventry. 

    When I later asked how serious my symptoms were after I had walked out of A&E after it had ground to a total standstill (people were waiting 6 hours to be seen!), I got properly scared because I heard phrases like "possible brain bleed" and "medical emergency" more often than I'd like. 

    I was triaged as a 4/5 and labelled 'low alert', and was later told I should have been a 2 or 3 based on my descriptions alone and told if it happened again I should call 999 immediately. 

    Perhaps unsurprisingly, I completely failed the next and final exam (although I feel almost everyone else did as well) despite extreme levels of preparation. 

    And this is just happening all over the country- my grandmother was finally offered an ultrasound appointment by the NHS when she had already died from cancer, I remember sitting in A&E for hours with a blood pressure over 180 at 16 years old...

    Really disappointing to see what is happening to this service. Used to be much better. 

Children
  • in reply to hypercolius

    ps … if you had a rash I’d suggest going to your gp immediately … don’t want to scare you though! Wishing you well with your recovery SparklesPrayDove️Heart️

  • in reply to hypercolius

    Bless you … wow, how horrendous! What is happening to this Country? Can you see your gp locally, get referred to a Consultant … you’re far too young to have bp like that, just a suggestion. There’s a good Forum on The Stroke Association.org … they were the only ones that helped me through my first few Strokes, and I think there are are Specialist (kind) NuPrayes you can speak to over the phone. There’s also I thin’ it’s called the Brain Charity .org … again Nurses you can talk to. So sorry to hear about your Grandmother, bless her. Take care and hope youPrayind a solution … poor health isn’t fair at any age … but you’re just starting out. Speak to your mp if no joy or the Care Quality Commission. Sending positive vibes PrayHeart️SparklesScales️Sparkles