The dreaded Hospital Experience

Hi all,

I’m hoping someone can give some tips re being admitted to an and e, (amAuADHD). I always come out worse than I went in! Have had a few Strokes in the last four years, and collapsed in the high street a few days ago. (Everyone walked by of course … very sad!). Managed to call an ambulance but was dreading it … as our local hospital is a nightmare and I knew what was awaiting me! The paramedics said they had to take me in, so I decided to go for it. Let’s just say if anyone has watched ‘Fawlty Towers’ on TV … our hospital is very similar … sigh … Confused 

There was a bully ‘in charge’ of the dept, they weren’t ‘busy’, and there were empty bays. I was left on a hard trolley in the centre of the room by the COMPUTERS AND ADMIN STAFF, the sensory overload was a nightmare, it’s on my records I have Autism and need ‘Reasonable Adjustments’. But no, I was left out in the open, with zero dignity, and a junior doctor came and ‘examined’ me many hours after the episode (so any signs of a TIA would have disappeared by then … my abdomen exposed to the whole ward and staff along with my personal info. Oh, and once again, I wasn’t ‘triaged’ or given a wrist id band for four/five hours when I pointed it out! They wouldn’t do any scans and I was discharged, still unable to walk properly, headache had lessened slightly but I was worried as it was c.1...00am when I got back (£60.00 taxi) that I had to pay for. Zero support at home.

Hospitals seem to have lost their ‘compassion’, and I now face having to make a complaint on monday about the bully and the lack of treatment.

V hard to deal with, when you have Autism. I just managed to hang on to see this young dr (who was shaking! I think I must have been his first patient Scream … as I kept wanting to just run out of t

as I was being ignored and was sensory overwhelmed, I nearly ran (well, hobbled) out of the dept! I wish I had in hindsight. Still ill, gp useless, scared to call paramedics as I’d have to go through the same thing again.

Thinking of moving to another part of the country where a) better nhs, b)People with Autism are treated with more respect …. any ideas where?

ZazzySparkles

Parents
  • I am sorry that you had a stroke. What you describe should not happen for anyone whether you are neurodiverse or neurotypical. You should be able to be examined in private for anyone. Unfortunately A+E can be difficult and I was once not on a ward for 8 days. I try and help if  I need to go to hospital to take defenders to hospital and something of comfort. You didn't have time to prepare. Try and make an appointment with a GP if you think it will be helpful as a follow up. Good luck with your complaint. 

  • Hi  Thankyou for your reply. Wow! 8 days on an and e??! ScreamI was 3 days in an and e before being moved to a Ward …I couldn’t have stuck with 8 days. No, gp’s here are useless Expressionless I had a lovely old school gp but he passed away sadly. I still can’t believe they stuck me in the ‘admin’ area … empty bays around me for ages, no id wristband, very weird. Thankyou, will ring the complaints dept tomorrow, dreading it, as they are tending to ‘stick up’ for each other now. Have to see how the PTSD is first Confused Fell over day after return … was too terrified to call 999 as just can’t face that abuse again. Sleeping through the day, hoping that will help. Thankyou again HeartSparkles

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  • Hi  Thankyou for your reply. Wow! 8 days on an and e??! ScreamI was 3 days in an and e before being moved to a Ward …I couldn’t have stuck with 8 days. No, gp’s here are useless Expressionless I had a lovely old school gp but he passed away sadly. I still can’t believe they stuck me in the ‘admin’ area … empty bays around me for ages, no id wristband, very weird. Thankyou, will ring the complaints dept tomorrow, dreading it, as they are tending to ‘stick up’ for each other now. Have to see how the PTSD is first Confused Fell over day after return … was too terrified to call 999 as just can’t face that abuse again. Sleeping through the day, hoping that will help. Thankyou again HeartSparkles

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