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Introduction and appeal

tiredverytired

Hello, this is an introduction and appeal for information/help/advice in one.

Since this may go to some kind of litigation in the future perhaps you can refer 

to me as tiredverytired, this properly reflects my feelings regarding our local

NHS mental health department.

I have an Autistic daughter and was briefly on this forum quite some time ago

when we could not get her assessed by the Mental health authority local to us.

The details are very long winded but basically they stalled us at every turn

and delayed her diagnosis for a good ten years, in fact more than this but I

am removing 3 or 4 years as the actual process time for wait list etc.. that

I suppose you have to expect.

The later half leading to eventually getting her diagnosed was a fairly bad 

tempered afair with us complaining considerably about their delaying and also

about certain discussions we had with various Doctors about my daughters needs 

being met and she did not require a diagnosis.

She was eventually diagnosed in an assessment, to clarify at this time she was

higher functioning autism. Unfortunately since then she has developed pyschosis

which has returned/persisted and is thought to be schizophrenia.

It is my personal belief that my local mental health authority are a bunch of self 

serving morons that make it up as they go along. They are obsessed with protecting

their funds and impeding us helping our daughter. Because of our criticisms they 

have adopted an antagonistic approach and are misrepresenting us in medical notes.

My daughter's mom has sought legal advice, there is a clear case of state 

abuse/neglect however the last case in our area which came up led to the mother 

being character assasinated and her child being removed from her. 

We both believe that they [NHS mental health] have been trying to errode and falsly 

suggest a lack of care, and embed historical lack of care etc.. in notes to 

mitigate themselves and their errors. They also know all our complaints and

seem to be setting out their stall so to speak with a view to defending themselves

at a later date.

1. Can we do anything about this abuse of notetaking and deliberate lying.

2. How best can we proceed to ensure we hold them to task now and in the future.

Due to disclosure of information we have obtained all my daughters notes and their 

are many incorrect statements in them with clear misrepresentations.

Basically it boils down to them trying to prevent/stall/avoid diagnosis

then defend and cover themselves legally.

Does anyone have any ideas on the best approach we should take.

Forgive spelling/grammar.

Tiredverytired...

Parents

  • Thanks for the reply.

    Yes my personal thought is that it would be a waste of time trying to legally challenge the parties even though there is considerable evidence they have adopted  a policy of non diagnosis in our catchment area. I also think if it were to be done it should have been done many years ago when it could have possibly acheived some good for my daughter.

    Unfortunately however there will be no peace.

    I am one of several parties involved and so it's out of my hands to some extent.

    Also I would really like to say that the Doctors etc.. involved could help significantly

    but I doubt this. Their main concern seems still to cover themselves and they show a very poor consideration of the facts of my daughters situation at times.

    e.g. she started out on one anti psychotic which had unacceptable side effects, was moved onto different drug. After a considerable time she was then being swapped over to what was supposed to be a different medication again. Turns out that the Doctor had not fully read her notes and this new drug was in fact the original one which was discounted due to side effects. The Doctor denied this initially but we referenced her notes and it confirmed this to be so.

    It seems strange that a system can evolve where the basic unwritten policy is to avoid and discourage diagnosis. They did identify my daughter was presenting with autistic traits very early on. We found this out when the medical notes were requested. They did not give up these notes easily however, first request they gave out only some notes and we specifically had to request the missing years from them.

    Despite two Doctors assessing our daughter they did not inform us of their findings at the time. They continued to play dumb for the next 8 years. 

    I am not sure how you could suppose to put your trust in people who coordinatedly suppress diagnosis of your child. They don't just fail to diagnose, they stall the diagnosis with every dirty trick in the book. They lead you on a grand tour of nonsense to put you off, intimidate you, sidetrack you, then delay you with waiting lists of years. Then last pitched efforts to stop you continuing the process.

    This may all sound a little vitriolic and over the top but I assure you is genuinely our experience. I write it here and if nothing else you should be wary because it is a familiar story in our county. We have spoken to others with similar experiences and treatment. If you have an autistic child or think your child may have autism and live in certain catchments then beware!

    No replies needed... 

Reply

  • Thanks for the reply.

    Yes my personal thought is that it would be a waste of time trying to legally challenge the parties even though there is considerable evidence they have adopted  a policy of non diagnosis in our catchment area. I also think if it were to be done it should have been done many years ago when it could have possibly acheived some good for my daughter.

    Unfortunately however there will be no peace.

    I am one of several parties involved and so it's out of my hands to some extent.

    Also I would really like to say that the Doctors etc.. involved could help significantly

    but I doubt this. Their main concern seems still to cover themselves and they show a very poor consideration of the facts of my daughters situation at times.

    e.g. she started out on one anti psychotic which had unacceptable side effects, was moved onto different drug. After a considerable time she was then being swapped over to what was supposed to be a different medication again. Turns out that the Doctor had not fully read her notes and this new drug was in fact the original one which was discounted due to side effects. The Doctor denied this initially but we referenced her notes and it confirmed this to be so.

    It seems strange that a system can evolve where the basic unwritten policy is to avoid and discourage diagnosis. They did identify my daughter was presenting with autistic traits very early on. We found this out when the medical notes were requested. They did not give up these notes easily however, first request they gave out only some notes and we specifically had to request the missing years from them.

    Despite two Doctors assessing our daughter they did not inform us of their findings at the time. They continued to play dumb for the next 8 years. 

    I am not sure how you could suppose to put your trust in people who coordinatedly suppress diagnosis of your child. They don't just fail to diagnose, they stall the diagnosis with every dirty trick in the book. They lead you on a grand tour of nonsense to put you off, intimidate you, sidetrack you, then delay you with waiting lists of years. Then last pitched efforts to stop you continuing the process.

    This may all sound a little vitriolic and over the top but I assure you is genuinely our experience. I write it here and if nothing else you should be wary because it is a familiar story in our county. We have spoken to others with similar experiences and treatment. If you have an autistic child or think your child may have autism and live in certain catchments then beware!

    No replies needed... 

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