Introduction and appeal

Hello, this is an introduction and appeal for information/help/advice in one.

Since this may go to some kind of litigation in the future perhaps you can refer 

to me as tiredverytired, this properly reflects my feelings regarding our local

NHS mental health department.

I have an Autistic daughter and was briefly on this forum quite some time ago

when we could not get her assessed by the Mental health authority local to us.

The details are very long winded but basically they stalled us at every turn

and delayed her diagnosis for a good ten years, in fact more than this but I

am removing 3 or 4 years as the actual process time for wait list etc.. that

I suppose you have to expect.

The later half leading to eventually getting her diagnosed was a fairly bad 

tempered afair with us complaining considerably about their delaying and also

about certain discussions we had with various Doctors about my daughters needs 

being met and she did not require a diagnosis.

She was eventually diagnosed in an assessment, to clarify at this time she was

higher functioning autism. Unfortunately since then she has developed pyschosis

which has returned/persisted and is thought to be schizophrenia.

It is my personal belief that my local mental health authority are a bunch of self 

serving morons that make it up as they go along. They are obsessed with protecting

their funds and impeding us helping our daughter. Because of our criticisms they 

have adopted an antagonistic approach and are misrepresenting us in medical notes.

My daughter's mom has sought legal advice, there is a clear case of state 

abuse/neglect however the last case in our area which came up led to the mother 

being character assasinated and her child being removed from her. 

We both believe that they [NHS mental health] have been trying to errode and falsly 

suggest a lack of care, and embed historical lack of care etc.. in notes to 

mitigate themselves and their errors. They also know all our complaints and

seem to be setting out their stall so to speak with a view to defending themselves

at a later date.

1. Can we do anything about this abuse of notetaking and deliberate lying.

2. How best can we proceed to ensure we hold them to task now and in the future.

Due to disclosure of information we have obtained all my daughters notes and their 

are many incorrect statements in them with clear misrepresentations.

Basically it boils down to them trying to prevent/stall/avoid diagnosis

then defend and cover themselves legally.

Does anyone have any ideas on the best approach we should take.

Forgive spelling/grammar.

Tiredverytired...

Parents
  • Former Member
    Former Member

    Your daughter has complex mental health issues. She must come first whatever you do next.

    I would be very sceptical about whether it is the best thing for your daughter for you to spend more precious time and effort on a legal dispute. This advice comes from someone who has been a client of the legal system on a number of occasions (only employment disputes, construction disputes - I am not a criminal that needs a brief!). If you have the spare time and cash to gamble on making a point then the legal system has its uses. If you want to improve your financial position so that you can provide better help for your daughter then I would look elsewhere. Spend your time with her, spend your time working, spend your time in campaigning but do not waste your time on a legal system that only serves the lawyers and only consumes time and energy from all involved. The legal system is a very expensive machine which causes more anger and frustration than enything else that I have come across.

    The difficulty in getting a diagnosis consumes a lot of time on this discussion forum. Frequently, the doctors have a nigh impossible job of untangling the root causes of the symptoms that present themselves. We, on the spectrum, are singulalrly ill equipped to make the most coherent case in a doctors surgery. Our communication problems present an obstacle in convincing the doctor that we have a problem with our communication skills. This is a classic Catch 22. If we could communicate our problem better then we wouldn't have a problem.

    The other issue is that we frequently present with a whole micture of other symptoms. Depression, anxiety, mania, etc etc present a smokescreen through which a doctor has to identify the autism which lurks behind this fog.

    For all of these reasons I would say: "make peace with the people that can help your daughter". Engage with them and try and understand how you can help her.

    If you think that there is an issue that can be campaigned for then find a local group that wants to make that point. Beware, however the problems of groupthink that will convince each other that the problems are all on the other side.

Reply
  • Former Member
    Former Member

    Your daughter has complex mental health issues. She must come first whatever you do next.

    I would be very sceptical about whether it is the best thing for your daughter for you to spend more precious time and effort on a legal dispute. This advice comes from someone who has been a client of the legal system on a number of occasions (only employment disputes, construction disputes - I am not a criminal that needs a brief!). If you have the spare time and cash to gamble on making a point then the legal system has its uses. If you want to improve your financial position so that you can provide better help for your daughter then I would look elsewhere. Spend your time with her, spend your time working, spend your time in campaigning but do not waste your time on a legal system that only serves the lawyers and only consumes time and energy from all involved. The legal system is a very expensive machine which causes more anger and frustration than enything else that I have come across.

    The difficulty in getting a diagnosis consumes a lot of time on this discussion forum. Frequently, the doctors have a nigh impossible job of untangling the root causes of the symptoms that present themselves. We, on the spectrum, are singulalrly ill equipped to make the most coherent case in a doctors surgery. Our communication problems present an obstacle in convincing the doctor that we have a problem with our communication skills. This is a classic Catch 22. If we could communicate our problem better then we wouldn't have a problem.

    The other issue is that we frequently present with a whole micture of other symptoms. Depression, anxiety, mania, etc etc present a smokescreen through which a doctor has to identify the autism which lurks behind this fog.

    For all of these reasons I would say: "make peace with the people that can help your daughter". Engage with them and try and understand how you can help her.

    If you think that there is an issue that can be campaigned for then find a local group that wants to make that point. Beware, however the problems of groupthink that will convince each other that the problems are all on the other side.

Children
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