Referred to autism assessment - lots of questions

Hi everyone,

I'm 32 and was diagnosed with inattentive type ADHD a couple of years ago. I was referred to a psychotherapy assessment a few months ago to deal with my anxiety, but the team there referred me to do an autism assessment instead. Having spoken to several different healthcare professionals/therapists, I feel pretty certain that I'm on the spectrum, but I'm having a hard time processing it all.

When speaking to the psychotherapy team about my struggles, I felt certain autism plays a significant role, but when they asked me to fill in the screening form (AQ-50 I think) I had a really hard time relating it to my lived experience. The best way I can describe the mismatch is that I feel like I understand social cues and relationships, but it takes a lot of conscious effort/energy and I worry constantly that I'm either misunderstanding others, or that I'm being misunderstood myself. The questions in the screening form felt either far too specific (e.g. "I am not very good at remembering phone numbers.") or too vague (e.g. "I find it difficult to work out people’s intentions.") to relate to. I also didn't feel like they capture the anxiety and exhaustion - which is all I really care about if I'm honest. Can anyone else relate to this? 

It's been a few weeks since I was referred, but it has suddenly started feeling overwhelming. I'm not sure how long the NHS wait list for autism assessments is now, but my daughter had to wait ~18 months so I suspect it will be a while. I was told to start living with the assumption that I'm autistic, but I'm not really sure how... I'd really appreciate any perspectives or advice from other late diagnosed people! 

Parents
  • Hi  and welcome. I am a 60 year old AuDHDer, diagnosed last year. The assessment process is tiring and asks a lot of us emotionally but it is worth it.

    Personally I didn't find the AQ-50 difficult but I am a consumer researcher, so I am adept with questionnaires. I can see how the phrasing may be challenging for some folks. Many of us end up reading a lot about autism, which can help us understand what differences we may experience and why. 

    Take it slow, and enjoy the exploration of what it might mean for you, including accepting yourself and honouring your needs and boundaries.

Reply
  • Hi  and welcome. I am a 60 year old AuDHDer, diagnosed last year. The assessment process is tiring and asks a lot of us emotionally but it is worth it.

    Personally I didn't find the AQ-50 difficult but I am a consumer researcher, so I am adept with questionnaires. I can see how the phrasing may be challenging for some folks. Many of us end up reading a lot about autism, which can help us understand what differences we may experience and why. 

    Take it slow, and enjoy the exploration of what it might mean for you, including accepting yourself and honouring your needs and boundaries.

Children
No Data