Received confirmation of diagnosis today

Hi

I attended the ADOS-2 and ADI-R assessments with clinical partners 2 to 3 weeks ago and received confirmation of my autism diagnosis today. I had an IEP and was in special education classes as a child. I saw psychologists, occupational therapists among other medical professionals, and social communication deficits, poor gross and fine motor skills, lack of spatial awareness, difficulties with planning and executive function as well as awareness of time and time management were identified by my teachers and the medical professionals who met me. No formal diagnosis was given at the time despite the concerns of the school and the validation of those concerns by the doctors that assessed me. I think in part due to my parents opposition to the schools suggestion that I have developmental disabilities. 

I am yet to receive my full report but I understand that it should be available to me within the next few days. It is good to be here and I would appreciate any advice that may aid me at this stage following diagnosis. 

Parents
  • Congratulations on your diagnosis.  And welcome!

    It can be a lot to assimilate.  I'd make some enquiries as to what your local support offer is.  Often there isn't much but most areas have some groups for people who are newly diagnosed or are awaiting a diagnosis which would give you the opportunity to meet other Autistic people, help you identify what your particular needs are and point you in the right direction.  You should get some pointer in your report too when you get it.  Mine ended with a list of recommendations.

Reply
  • Congratulations on your diagnosis.  And welcome!

    It can be a lot to assimilate.  I'd make some enquiries as to what your local support offer is.  Often there isn't much but most areas have some groups for people who are newly diagnosed or are awaiting a diagnosis which would give you the opportunity to meet other Autistic people, help you identify what your particular needs are and point you in the right direction.  You should get some pointer in your report too when you get it.  Mine ended with a list of recommendations.

Children
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