Navigating the right to choose pathway

Today my 17 year old daughter who is awaiting autism adhd assessment became very overwhelmed because she, like me is really worried about the whole assessment process. After years of being misunderstood and trying to access support and being denied in the past, there is this fear that no matter what we write on the forms, whatever documented evidence we provide, it won’t be enough. We are hanging on in there, doing what we’ve been asked, completing necessary forms etc. But how do you boil down all of the moments over a life time into something coherent. It just feels impossible. 

Parents
  • Hiya. That's difficult for me to answer as I waited for an NHS assessment for over 3yrs and during that time I saved up for a private ASD assessment, opposed to ADHD but the two are definitely linked. I think its natural and understandable to worry but I think you just have to be honest and go from there. Answer or write with what you think and feel not what you they want you to think and feel. I wish you and your daughter all the best. There will be people here who can help and have likely been through the exact same process. 

Reply
  • Hiya. That's difficult for me to answer as I waited for an NHS assessment for over 3yrs and during that time I saved up for a private ASD assessment, opposed to ADHD but the two are definitely linked. I think its natural and understandable to worry but I think you just have to be honest and go from there. Answer or write with what you think and feel not what you they want you to think and feel. I wish you and your daughter all the best. There will be people here who can help and have likely been through the exact same process. 

Children
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