Questioning Myself

Hello

I am 36 years old and have spent what feels like my entire life trying to make sense of myself and my place in the world. My father died when I was a young child, after which I only ever remember feeling anxious all the time about everything. I have always placed a great deal of importance on that life event in explaining the way I was, whilst at the same time unable to shake the feeling that something else just wasn’t quite right. I have tried counselling a number of times over the years which has had little impact, but today I had a conversation with my therapist who I have been seeing for a number of weeks now and we discussed the possibility that I possess a number of traits compatible with autism.

Socially I have a small group of friends, all of which I have been friends with since school, some since primary school. Despite this, for much of my early high school years, I remember hearing about how they had met up at the weekends or after school, whereas I was always very isolated, choosing instead to stay at home. Latterly, when we reached the age where house party’s/pubs/clubs became the norm, I embraced this but would drink heavily and would only feel comfortable having a drink to sip on in social situations. I have had various jobs and am on course to complete my third degree at university later this year, however in all that time I haven’t ever made a single friend that I have managed to maintain contact with after leaving said jobs/courses. My two previous uni courses I had one friend on each, but on both occasions it was them who reached out, whilst I awkwardly accepted their advances, deep down really wondering why they even wanted to hang around with me. Similarly, I had one friend from a previous job who I have no idea where the friendship arose from and I just sort of went along with it, without really feeling any sort of deep connection with them. 

Generally I feel very awkward conversing with people on a day to day basis and will often struggle with awkward silence, or what to say next. I can initiate conversation at a very superficial level, “hi how are you? What did you do at the weekend?”, however maintaining the conversation or going beyond this really basic chat is a challenge and I often feel very embarrassed answering their questions, as I feel they will think I am weird or boring or have nothing interesting to say. I did recently have someone at work tell me I “fly under the radar and play it safe”. Another scenario I can recall is sitting getting a haircut and feeling incredibly tense and nervous about the fact I wasn’t talking, to the point my back was covered in sweat when I stood up.

The eye contact thing definitely resonates with me in that I can make eye contact with people, but I will be constantly in my head trying to manage when to look someone in the eye when I am talking with them and how much is too much. I also think when I am talking myself I tend to look away from the other person, or if someone is explaining something to me, I tend to look at the ground, or in to the distance.

One of the things we discussed today was the fact I have always had jobs where hyper-focus is helpful and I have been known to immerse myself in reorganising the workspace, one example of which was in a very large department and did this work almost completely on my own. 

Conversely, in my home life I often put off tasks like cleaning, tidying, laundry etc because I often find myself far too drained or exhausted and simply want to use my spare time to recharge. Despite this, I crave order at home and can often become quite distressed when things aren’t clean, tidy or the way I want things to be, which has caused friction in my relationship. This distress just makes it more likely that I will put off doing the task and sometimes it feels impossible to even start.

My current relationship is a huge reason I started seeing my current therapist, as I have been feeling very overwhelmed thinking about committing to a serious future with her, much of which I think stems from the fact I constantly feeling like I am trying to maintain order and control in my own life and the thought of sharing responsibility for a home and a family with someone else who may see things differently feels very daunting. I have only had a small handful of serious relationships, each of which lasted less than two years. My current is the first to move beyond this point and the first time I have lived with a partner.

I am constantly worried about the future and have this need for everything to be right and for everything to play out the way I want, to the point I will stress about every possibly outcome.

Its difficult to really express everything that goes on inside my head which has led to this, but talking to the therapist today it just felt like the penny had finally dropped and so much of my behaviour finally made sense. I have spent most of the day on a bit of a deep-dive into ASD, but I still have more questions and answers. So much of it I identify with, but then some other areas not so much. 

I guess I just wondered if everything I described resonates with people on here.

Parents
  • Yes it resonates with me, none of have every symptom on the list of possible symptoms, this is why its called a spectrum disorder, some of us will have some stuff that effects us very badly or very mildly, sometimes it will depend on the situation, like I could stand up in a room of strangers and give a lecture, as long as I was prepared and knew my material, but if someone raised to toast to me for something I'd want the ground to open up and swallow me, I'd be that embarassed at being singled out and feel terribly unworthy.

    There are a few stereotypes about autistic people, like that we're all brilliant with tech, or we have little empathy, when often we have to much. There are a few online tests you could do, has your therapist suggested any routes to diagnosis?

    As for your Dad dying when you and presumably he, were at such a young age is bound to have a huge impact on you, maybe you had to grow up to soon, maybe the whole concept of death was one you'd never really heard of before? I may make you fear permanence, in case it's snatched away from you so suddenly again?

    None of these things will make you autistic or not, you could be looking at two completely diiferent issues here, one your suspected autism and two your Dads death and the effects it had on you. But don't think, that that means two problems to solve, it means a different approach to the work on your self development that you're already doing and the possibliity of finding more peace of mind.

  • Hi Catwoman,

    Thank you for taking the time to read and reply.

    I get the lecture thing. I can talk at length and very articulately in a situation that involves more structured communication like when I’m speaking to my therapist. Also when speaking one to one with someone I’m comfortable with like my mum or my partner I can speak very logically about what goes on in my head or my behaviour, I can talk in great depth and with some confidence. Even interviews I have always been able to perform well because I have prepared ahead of time what I will say. Small talk on the other hand, I struggle to go beyond some well rehearsed questions that I will ask of others and when the focus is on me, especially in a group situation, I feel how you describe wanting the ground to swallow you up.

    I did the Autism Quotient 50 question screening test and fell within the range of scores which would suggest assessment is appropriate. As for talking this through with my therapist, we only really discussed the possibility that I am describing some recognisable traits towards the end of the last session, so it’s something which we will need to pick up on next week when I go back.

    Regarding my dad’s death, I have discussed this in great depth with previous therapists and come to quite a detailed understanding of how this will have impacted me and spent a great deal of time trying to process the grief it caused. However, despite this I have always felt there was something more than this that has gone under the radar because I have constantly struggled to get my life in order and have this constant cyclical pattern of feeling ok for maybe a week and then just becoming so overwhelmed and wanting to shut myself away. The burnout thing really describes this very accurately and is something my therapist spoke about. I hadn’t really heard of autistic burnout before that, but it really resonates with me. I always felt a bit stupid when therapists or health professionals in the past have asked “how long have you felt like this” and I say “my whole life”, I feel like internally they are expecting me to say a few months or a few weeks and when I say that they probably think I’m a bullshitter.

Reply
  • Hi Catwoman,

    Thank you for taking the time to read and reply.

    I get the lecture thing. I can talk at length and very articulately in a situation that involves more structured communication like when I’m speaking to my therapist. Also when speaking one to one with someone I’m comfortable with like my mum or my partner I can speak very logically about what goes on in my head or my behaviour, I can talk in great depth and with some confidence. Even interviews I have always been able to perform well because I have prepared ahead of time what I will say. Small talk on the other hand, I struggle to go beyond some well rehearsed questions that I will ask of others and when the focus is on me, especially in a group situation, I feel how you describe wanting the ground to swallow you up.

    I did the Autism Quotient 50 question screening test and fell within the range of scores which would suggest assessment is appropriate. As for talking this through with my therapist, we only really discussed the possibility that I am describing some recognisable traits towards the end of the last session, so it’s something which we will need to pick up on next week when I go back.

    Regarding my dad’s death, I have discussed this in great depth with previous therapists and come to quite a detailed understanding of how this will have impacted me and spent a great deal of time trying to process the grief it caused. However, despite this I have always felt there was something more than this that has gone under the radar because I have constantly struggled to get my life in order and have this constant cyclical pattern of feeling ok for maybe a week and then just becoming so overwhelmed and wanting to shut myself away. The burnout thing really describes this very accurately and is something my therapist spoke about. I hadn’t really heard of autistic burnout before that, but it really resonates with me. I always felt a bit stupid when therapists or health professionals in the past have asked “how long have you felt like this” and I say “my whole life”, I feel like internally they are expecting me to say a few months or a few weeks and when I say that they probably think I’m a bullshitter.

Children
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