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getting the right support

ja1234

Hi I was just wondering if anyone was struggling to get the right support since some days I feel as though it's brilliant and some other time I am struggling to be heard and understood and listened which makes it quite upsetting and annoying.

I would like to know if anyone feels like this or whether this is just a normal part of autism as though something is going wrong. 

Please share your experiences.

  • Yes - personally I think it also difficult as one might not be able to identify when support is necessary or not.

    A bit like asking someone in a wheelchair to build their own access ramp for stairs.

  • ja1234 said:
    I was just wondering if anyone was struggling to get the right support since some days I feel as though it's brilliant and some other time I am struggling to be heard and understood and listened which makes it quite upsetting and annoying.

    It can be really hard to find support as an adult as there is little available on the NHS and what there is available often lacks understanding about autism

    There is a general lack of knowledge and understanding about autism in the world in general so expecting anyone to help is a real lottery. There remains a lot of prejudice around anything relating to mental health so I would advice to think carefully before disclosing it.

    If you need help then a private psychotherapist is your best option in my opinion - at around £50/hour it isn't cheap and you probably need dozens of sessions to develop good coping skills but for me it was worth the investment.

  • Hi ja1234, I’m sorry you are struggling to get the right support, I am to, I feel like support services do not fully understand or listen to what you say to them/ your feelings and the impacts, I am struggling with my mental health and I feel like I’m not getting the right support. I am  denied a social worker and mental health services only want to support me when I’m out of my current housing. I am the victim of ongoing anti social behaviour, harassment, slamming doors constantly, being abusive, her drug use, loud music, hate crime. This has been going on for 2 years next month. I don’t feel supported. Sorry for the long post and I hope it was ok to comment.