My diagnosis experience so far

Hello all

I didn’t introduce myself when I joined and thought I better remedy that.

I’m late diagnosed (aged 49) autism and adhd. I’d been thinking about talking to the doctor about a referral for a long time but thought I was overthinking things. Some things changed in the past couple of years that spurred me to start the process.

My diagnosis journey took about 8 months - I contacted my doctor in February, then completed a couple of basic autism & adhd forms, I included an additional letter as to why I wanted to be referred and then he referred me via Right to Choose. It was about 16 weeks before I had any updates from the health service, which was what I’d expected. Between June and October I completed more forms (I dreaded the forms - it took a lot of will power to start them but once I did it was a good exercise in self-reflection), and had several online appointments.

I received confirmation of autism during my last appointment. It was weird. During the process I’d been thinking what if it’s not autism or adhd? If it’s not I don’t know what else could explain the way things are. When I was given the diagnosis it was a strange mix on ‘I knew it!’ and ‘What if they’re wrong and I’ve managed to convince everyone?!’ I don’t get imposter syndrome much, but in this case I felt like a fraud, so I’ve been working hard to accept the diagnosis. I haven’t told many people, just close family and a couple of friends. It feels very delicate and I worry that people will want me to explain myself and defend the diagnosis, and at the moment I just want to sit with it for a while. 

I’m still getting my head around things. It’s very difficult to let go of years of ways of doing and thinking. I talked to the doctor about medication, but, and this is the conclusion that I’ve come to in my circumstances, I feel that the combined autistic and adhd behaviours and mindsets are so bound up in who I am that if I took anything to change that, I wouldn’t be me any more. My way of working and how I approach things is planned and chaotic, and I’d be off balance if I messed with that.

At least now, my collection of stones from racing circuit gravel traps feels justified.

Parents
  • Hello and welcome 

    Congratulations on your dual diagnosis and I hope you are well on the road to figuring things out. 
    Totally relate to what you have posted about and going through similar myself.

    Love the collection of gravel trap stones, I collected rubber balls off the racetrack last time I was in Valencia for the moto Gp. Unfortunately there is not many circuits that you can get on even after the racing has finished.

Reply
  • Hello and welcome 

    Congratulations on your dual diagnosis and I hope you are well on the road to figuring things out. 
    Totally relate to what you have posted about and going through similar myself.

    Love the collection of gravel trap stones, I collected rubber balls off the racetrack last time I was in Valencia for the moto Gp. Unfortunately there is not many circuits that you can get on even after the racing has finished.

Children
  • Thanks - it’s a strange sort of situation to find yourself in - it feels weird and perfectly expected at the same time.

    I have some gravel from the end of the Parabolica at Monza! That’s my favourite handful of grit! I managed to get it in 2000 when Michael Schumacher won with Ferrari and the Tifosi went crazy and invaded the track. So I followed. I’ve walked around Knockhill a few times since they started track walks after race weekends and have a collection of stones and bits of car. I haven’t been to any Moto GP racing but I watch it a fair bit. I’ve been to the TT - it’s bonkers!