No help since diagnosis

Hi,

Not sure what I'm asking for here, but I needed to reach out. I've been diagnosed with both ADHD and autism for a while (autism about 3 years, ADHD about 1). I'm 57, female and not medicated (ADHD diagnosis was most recent and although it was a while ago I've still not got to titration stage yet).

I don't know who I am. I've masked so successfully all my life (without knowing it was masking, just thinking it was trying to keep up with others) that I do not know where the mask ends and I start. I've tried to work out who I am since the diagnoses and all that's appeared is more confusion.

I've had no help or support since diagnosis either. After my autism assessment I was sent a bunch of photocopied info sheets, where it turns out most of the groups and support listed no longer exist or are suspended because of funds. There is no diagnostic team. The only thing on offer was a 6 week online course which turned out was aimed at parents of autistic children. and just explained what autism was (thanks, I can google that myself), so I left that.

I feel I am drowning more than I did before. I expected there to be a grieving and shock process, but I feel worse off now than when I was clueless about my diagnoses. it feels empty and alone.

Has anyone accessed anything useful in their acceptance and unmasking journey that perhaps I could look into? I realise I'm going to have to be proactive: no one (in the NHS) is going to actually supply any help.

Parents
  • I'm so sorry you're going through this. It really is a challenge and is something I continue to struggle with myself.

    If you're looking for resources, I highly recommend checking out the book Unmasking Autism: Discovering the New Faces of Neurodiversity by Devon Price. It includes helpful exercises for self-discovery and shares the experiences of other autistic people who've struggled with similar issues.

Reply
  • I'm so sorry you're going through this. It really is a challenge and is something I continue to struggle with myself.

    If you're looking for resources, I highly recommend checking out the book Unmasking Autism: Discovering the New Faces of Neurodiversity by Devon Price. It includes helpful exercises for self-discovery and shares the experiences of other autistic people who've struggled with similar issues.

Children