Hello - is a diagnosis worth it as an adult?

Hello, hope you don't mind me posting here as I haven't been formally diagnosed, so if inappropriate, please delete. I'm 47 years old and, after struggling to connect with people socially all my life, I've recently started reading more about autism since my wife told me that she thinks I'm autistic. Reading accounts from autistic people has been like reading about myself! It not only would explain my problems socially, but also why I have unusual interests and hobbies, why I like routines so much, my sleeping difficulties over the years, and why I find certain situations in work a challenge.

So my question to anyone who has been diagnosed, particular as an adult, is whether the process is worth it? I've read enough to be confident that I'm autistic, and I find medical consultations stressful, so I'm wondering if there is any benefit. I'm also wondering about my son, who's 17, and I'm pretty sure is autistic too.

I did see a counsellor 20 years ago about social anxiety and raised the possibility of having Asperger's at the time, having read about it, but she assured me that I didn't - on the basis of giving her eye contact - and I'm now sure that she was wrong.

Although I do struggle socially in work, I've been fortunate to do alright for myself and have been promoted to management after working for a long time in the same job, essentially by just doing as I was told. Bizarrely, I quite enjoy leading people, it works well for me as I can keep a natural distance from staff and act in a professional way. The disadvantages are having to network with other managers, which I really struggle with, and dealing with superior staff and HR processes which treat people in 'authoritarian' ways which seem alien to me. I'm not sure there's anything to be gained by presenting an autism diagnosis in work.

I'm also lucky enough to be happily married but I only have one friend otherwise who I've known since we were kids.

From what I've read, it doesn't sound like there are any medical treatments for autism, or medication that would help, so a diagnosis doesn't seem beneficial for that reason either. And I've read mixed / negative views of therapy being offered which seems aimed at making people behave more 'neurotypically'.

My son's context is slightly different: he's in sixth form and is doing reasonably well in school but doesn't have any friends who he meets outside of school. He did have a small friend group in primary but went up to secondary during the lockdowns in 2020 and pretty much lost all his friends in that period. Other than to go to school, he doesn't leave the house. He does have a friend in school who he seems to get on with, who has been diagnosed as autistic. I'm wondering if a diagnosis for him would help to prepare him for the wider world, so I'm interested to hear anyone's experience of being diagnosed in their late teens.

I have another, younger son who I'm pretty sure isn't autistic as he's out and about a lot of the time, had a girlfriend by the age of 11, and is constantly on group calls and chat with his many friends... I'm very proud of him but slightly envious! Any advice from autistic parents with neurotypical children?  How can I try and keep a good bond going with him growing up?

Thanks for reading!

Parents
  • Just wanted to thank everyone for all your replies and suggestions (and particularly the suggestions on resources / tests).  It's certainly prompted some discussion with my wife and sons, and we've been doing some of the tests on the Embrace Autism website: https://embrace-autism.com/autism-tests/  It looks like my suspicion was correct and my elder son and I both score within the range where autism is likely on multiple tests, while my wife and younger son score pretty much bang on the neurotypical average.  For the AQ50, my son and I were slightly above the mean for males diagnosed with HFA (36/38) while my wife had 15.

    What's really positive is that my son seems to have accepted that he may be autistic and that's part of who he is - he's been reading about autism with a couple of the boys in school he gets on well with and they've also been doing some of the tests, and he found that he scored higher than his friend who had an official diagnosis.  We're now talking about going to the GP, as we've found that he can get some additional help if he is formally diagnosed, such as support with exams where he can have the questions read to him through a headset, which he'd find useful.  I also decided to tell my friend, who was very positive about it, and it hasn't made any difference to our friendship. 

    It's still early days and we have a lot more to learn, but thanks again for the warm welcome as I step into the unknown!

  • Cheers  :-)

    When you step you, your son and family are "boldly going" where a lot of people have gone before...

    Hehe Live long and prosper!

Reply Children
No Data