Recently late-diagnosed woman wanting to join the community

Hello everyone, I am diagnosed autistic (ADHD diagnosed too) only one week ago. I feel a little emotional and lost to be honest. I feel so relieved and validated to be finally diagnosed with autism, I did suspect I was autistic for a long time. I’m a 50 year old woman just wanting to connect with similar women really, maybe you’re all further on with your late-diagnosed journey than me? Thank you in advance for any kind responses x I apologise in advance if I am late to reply, sometimes I get overwhelmed and need a while !!

Parents
  • Hey welcome here and congratulations on getting a diagnosis. I am awaiting assessment but currently self diagnosing as autistic. This is an amazing forum to read about other people’s experiences. 

  • Hi   how long have you been waiting for your assessment? I went through Right to Choose and only waited 5 months from seeing GP to getting both my diagnoses. I was very lucky because my GP was really supportive. 

  • I put in my forms through right to choose at the beginning of September and the waiting list is 5 months approximately. I am very anxious about the assessment, like, if I’m not being autistic enough for the assessor to notice, I will feel I wasted so many people’s time. My GP receptionist helped me the most. I was struggling with some of the forms and with choosing who to go with, she helped me on the phone to get everything done and reassured me, it was very kind. So I have read so much information and it’s pretty clear I am autistic. 

  • Thanks for your really kind reply. It’s been very hard feeling sort of lost for so long and not able to explain how it is to be me. Coming here and finding people who have similar experiences is amazing. If I think of any questions I will ask you for sure. 

  •   I totally understand your feelings because I felt similar. The assessor takes you back to childhood to discuss your development experiences and it is not only based on how you present on the day (they are aware of anxiety, masking habits etc). Be yourself, absolutely relax into the process if you can - my assessor was so supportive and I felt so at ease that I started to unmask anyway. The not knowing what it will be like is always the worst, so you can ask me any questions if you need to? Or others you know on this forum? You are absolutely not wasting anyone’s time, the service is there for you. It can actually be the opposite - I’ve been misdiagnosed so much in the past that you could consider those experiences a waste of professionals time when all along it was autism and ADHD! Btw I have now started some ADHD medication so I’m unsure how this will affect my autism!! Such a learning process all the way

Reply
  •   I totally understand your feelings because I felt similar. The assessor takes you back to childhood to discuss your development experiences and it is not only based on how you present on the day (they are aware of anxiety, masking habits etc). Be yourself, absolutely relax into the process if you can - my assessor was so supportive and I felt so at ease that I started to unmask anyway. The not knowing what it will be like is always the worst, so you can ask me any questions if you need to? Or others you know on this forum? You are absolutely not wasting anyone’s time, the service is there for you. It can actually be the opposite - I’ve been misdiagnosed so much in the past that you could consider those experiences a waste of professionals time when all along it was autism and ADHD! Btw I have now started some ADHD medication so I’m unsure how this will affect my autism!! Such a learning process all the way

Children