Newly diagnosed and struggling.

Hi everyone,

I was recently diagnosed. My first reaction was a kind of “wow.” I just didn’t think I was “autistic enough”. At the same time, I felt this tightness in my chest and throat… like I wanted to cry but couldn’t, at least not in front of her. So I masked it and acted as “okay” as I possibly could. Later, when I got to the car, I wanted to cry with my mum but her boyfriend didn’t really let me. He said things like “Don’t think about the past,” and “This doesn’t define you, don’t cry” which honestly felt quite dismissive. Since then, it’s as if there’s still so much inside me that I haven’t been able to let out.

In the first few days, I felt a mix of shock, relief, and sadness. Relief because I finally understood that I wasn’t “crazy” or “weird” for the past 25 years. I was just autistic. But 23 days later, I feel like I’m going through a really strong grieving process and it’s incredibly lonely. People tend to minimise it a lot because I’m an adult or they simply don’t know how to handle someone else’s pain. I often hear things like “Don’t cry” or “You really don’t seem autistic, you’re brilliant” which I honestly hate.

I just wanted to share this here because I think I need a space where people might actually understand what this feels like.

Thanks for reading.

L x

Parents
  • Thank you L for sharing. Today I was officially diagnosed and not sure how I feel yet. I have shared with two ppl and to be quite honest, terrified that people will start distancing from me even more and yet I am doing my best not to worry about that. It takes courage to go through this journey of authenicity and self-awareness. Most people do not know how to show up and be present because most times it will reflect parts within themselves. Know that you are not alone and I am glad you are here. People who are more loving, allowing, safe, and curious about your journey will come into your life. Those who love you for you, will reveal themselves and others will fall away.  I am grateful for you!

  • Hi 

    Getting a diagnosis can bring up so many mixed feelings.

     It’s a lot to process after years of trying to fit in.

    When I started to realise I might be autistic, I felt the same tangle of emotions.

    You’re definitely not alone in feeling this way.

    Like I have a therapist helping me to untangle things, which may be an option for you moving forward.

    Keep reaching out for help and support on here.

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