Newly diagnosed and struggling.

Hi everyone,

I was recently diagnosed. My first reaction was a kind of “wow.” I just didn’t think I was “autistic enough”. At the same time, I felt this tightness in my chest and throat… like I wanted to cry but couldn’t, at least not in front of her. So I masked it and acted as “okay” as I possibly could. Later, when I got to the car, I wanted to cry with my mum but her boyfriend didn’t really let me. He said things like “Don’t think about the past,” and “This doesn’t define you, don’t cry” which honestly felt quite dismissive. Since then, it’s as if there’s still so much inside me that I haven’t been able to let out.

In the first few days, I felt a mix of shock, relief, and sadness. Relief because I finally understood that I wasn’t “crazy” or “weird” for the past 25 years. I was just autistic. But 23 days later, I feel like I’m going through a really strong grieving process and it’s incredibly lonely. People tend to minimise it a lot because I’m an adult or they simply don’t know how to handle someone else’s pain. I often hear things like “Don’t cry” or “You really don’t seem autistic, you’re brilliant” which I honestly hate.

I just wanted to share this here because I think I need a space where people might actually understand what this feels like.

Thanks for reading.

L x

Parents
  • It is hard. I don't know what else to say.

    It explains things, it doesnt solve them, but that is forward looking and you can come up with ways to make things better.

    The hard part is reframing the past and coming to terms with things. Depending on your past this can be very hard. I have cried every day for 10 months. I am making significant progress now, although I oscillate a lot and some times it doesn't feel like it. I have used AI to discuss a lot of things. I know some here don't like it, but there are ways to use it very productively. Although I think it won't suit most, it suits me and my way of thinking once I figured out how to have a conversation with it.

    I thought I could handle my issues and they would go, but the grief is hard. I have found a ND trauma counsellor to get some help. 

Reply
  • It is hard. I don't know what else to say.

    It explains things, it doesnt solve them, but that is forward looking and you can come up with ways to make things better.

    The hard part is reframing the past and coming to terms with things. Depending on your past this can be very hard. I have cried every day for 10 months. I am making significant progress now, although I oscillate a lot and some times it doesn't feel like it. I have used AI to discuss a lot of things. I know some here don't like it, but there are ways to use it very productively. Although I think it won't suit most, it suits me and my way of thinking once I figured out how to have a conversation with it.

    I thought I could handle my issues and they would go, but the grief is hard. I have found a ND trauma counsellor to get some help. 

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