Help

One of my difficulties is that I suffer from stress induced seizures, and, as a result, I end up being too frazzled to sleep, which leads to compound exhaustion involving more stress ~ and more seizures, then even less sleep, and even more seizures with increasing intensity.

So perhaps obviously I can relate with your situation somewhat, given that in my case I have no sense of time passing ~ what with the irregular sleep patterns ~ resulting in my days and weeks (in the waking and then sleeping sense) turning out to be weeks, months or even years for everybody else. In this respect, ordering prescriptions and doing things on time does get “rather” problematic.

The thing with the blood tests and reduced prescription thing, perhaps obviously now ~ is that if they do not know the state of your blood chemistry ~ they are not going to run the risk of potentially letting you overdose / poison yourself with a full prescription if something is wrong ~ damage limitation / emergency treatment protocols and all that.

In order to reduce this sort of thing myself, I use a physical wall-hung calender to cross-off each day I take my medication, in correlation with my laptop to check the actual time and date.

I have got to the stage now where I do my main medications each and every day out of pure force of habit, just as I have also in terms of eating meals and drinking fluids at least 5 times a day much more often than not ~ what with my only sense of being hungry or thirsty being when my stomach starts making loud enough sounds ‘growling’ (as the expression goes) to let me know audibly ~ provided I am not too fragged and or hypoglycaemic to realise what’s going on (which happens from time to time).

With the days I miss crossing off on the calender, it gives me a better idea of how much time I am losing sense of, and when prescriptions and appointments need to be dealt with – or what needs to be done if they haven’t been.

Fortunately the lead practice GP has autistic offspring, and understands my difficulties without me having to explain every thing, and I have my record file flagged for special needs / reasonable adjustment / equality act provisions so that receptionists are aware of my communication difficulties – which makes things a lot smoother, most of the time.

I wrote a letter to start with and made a double appointment to discuss it all ~ and it all got sorted in one appointment time. Surprising easy, especially considering how difficult it had been and still is on occasion.

Ah well ~ back to it, day three of today, being that I am supposed to be waking up soon yet again. Eyes rolling forced smile emoji.

One of my difficulties is that I suffer from stress induced seizures, and, as a result, I end up being too frazzled to sleep, which leads to compound exhaustion involving more stress ~ and more seizures, then even less sleep, and even more seizures with increasing intensity.

So perhaps obviously I can relate with your situation somewhat, given that in my case I have no sense of time passing ~ what with the irregular sleep patterns ~ resulting in my days and weeks (in the waking and then sleeping sense) turning out to be weeks, months or even years for everybody else. In this respect, ordering prescriptions and doing things on time does get “rather” problematic.

The thing with the blood tests and reduced prescription thing, perhaps obviously now ~ is that if they do not know the state of your blood chemistry ~ they are not going to run the risk of potentially letting you overdose / poison yourself with a full prescription if something is wrong ~ damage limitation / emergency treatment protocols and all that.

In order to reduce this sort of thing myself, I use a physical wall-hung calender to cross-off each day I take my medication, in correlation with my laptop to check the actual time and date.

I have got to the stage now where I do my main medications each and every day out of pure force of habit, just as I have also in terms of eating meals and drinking fluids at least 5 times a day much more often than not ~ what with my only sense of being hungry or thirsty being when my stomach starts making loud enough sounds ‘growling’ (as the expression goes) to let me know audibly ~ provided I am not too fragged and or hypoglycaemic to realise what’s going on (which happens from time to time).

With the days I miss crossing off on the calender, it gives me a better idea of how much time I am losing sense of, and when prescriptions and appointments need to be dealt with – or what needs to be done if they haven’t been.

Fortunately the lead practice GP has autistic offspring, and understands my difficulties without me having to explain every thing, and I have my record file flagged for special needs / reasonable adjustment / equality act provisions so that receptionists are aware of my communication difficulties – which makes things a lot smoother, most of the time.

I wrote a letter to start with and made a double appointment to discuss it all ~ and it all got sorted in one appointment time. Surprising easy, especially considering how difficult it had been and still is on occasion.

Ah well ~ back to it, day three of today, being that I am supposed to be waking up soon yet again. Eyes rolling forced smile emoji.