Hello

Hello, I had a late diagnosis of Autism last September. Relief in one way but hard in another. Anyone else feel that way? Thanks!

Parents
  • Congratulations on your diagnosis and welcome to the community! 

    Following a diagnosis, it can be common for us to experience a lot of emotional dysregulation. Besides perhaps feeling some relief about now having an explanation for our past difficulties, this can also include working through a phase where we experience confusion, uncertainty, so-called "imposter syndrome", and/or (backward-focused) anger, frustration, grieving, and more.

    So please don't worry - it's normal, and it can last for quite some time, not least because - especially for late-diagnosed adults - there's a lot to look back on through this new lens. 

    As for many others here, my own diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of instant solutions for my difficulties.

    I know your diagnosis was a while ago, but if you haven't yet seem them, the NAS has a great set of articles focused on "after diagnosis", which you might still find helpful:

    NAS - How you might feel after a diagnosis - includes perspectives from other autistics

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. If you haven't yet had this - or if you're planning more in the future - you might find it helpful to borrow or buy this book. It discusses various types of therapy and counselling, and offers advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    This book also taught me some important principles and enabled me to make some immediate, helpful changes - perhaps you might find it useful, too:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

  • Thank you, these look great resources! 

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