What's An Assessment Like?

I'm due for my autism assessment in November. I am traveling from the USA to Lithuania to do it just because of cost. Yes...it's cheaper to fly to Lithuania, stay for a few days, and fly back than it is to pay for an assessment in the place where I live. Greatest country in the world. (That's sarcasm.) 

I have been keeping notes, and I have copies of my masking test and aspie quiz. However, there is no family member, besides my wife and children, who might be able to communicate to the specialist, certainly not about my childhood. I am estranged from my family, primarily because I had to draw harsh boundaries after getting diagnosed with CPTSD in 2010. 

I'm expecting to be interviewed. Will they do things like make me sit in a room by a strobe light or in some annoying space that smells like socks and fish as they pump in the sound of artillery fire to see how I react? Will I be given a cognition test of some kind? 

I'm 52 and male and have a relatively stable career. I'm skilled at masking---in recent weeks, I've become quite aware of just how sophisticated my masking is. I'm sure many here know what I mean by this, so I won't explain it. Do they have a way of dismantling the masking, or "forcing me" into stressful situations where I might reveal some stimming or some more outward sign. I'm concerned that I'll manage to hide my autism from the specialist in the same way I hide it everywhere else. At the same time, this fear might be a tentacle of impostor syndrome. 

I'm sure they've devised ways to handle all this. Still, I'm anxious to know what awaits me so that I'd have some way of predicting it. 

Parents
  • If it is anything like what I did:

    There will probably be some forms to fill in advance. Some are the screenimg tests, some are personal detail related. One of my forms covered questions related to autistic traits. I took 1-2 weeks to fill this in as I thought of things. I researched things online, then thought back to find evidence, which took time. I don't know how common this is but it removes the pressure to try to remember stuff as they have read it all in advance.

    You have one or more sessions. I had one to talk about my life and background in general, and one about the autistic traits. They clarified any points from the answers I supplied and I could raise anything else.

    The sessions were steered conversations, not an interview. They stop you from rambling, or going off topic and wandering into special interests.

    I also did the ADOS-2 test, which is a session with a behavioural expert, you do some simple tasks and talk a bit about your life.

    There is no pass or fail. I think it may be  possible to fake being normal if you are good at masking and wanted to, but you need to just relax and be yourself, I think it is harder to fake being ASD. They look for consistency, it is about what you don't say, how you phrase things, what you talk about, not just claiming to have some traits. It is better to all be done face to face.

    I thought I had done too well and might just be a quirky worried normal person. But they'd though I was positive from the initial discussion before we even started.

    How they handle absence of an informant is up to them, it should be possible, you should ask.

    There shouldn't be anything confrontational or awkward. They should want you to be at ease and talk. But I don't know Lithuania.

Reply
  • If it is anything like what I did:

    There will probably be some forms to fill in advance. Some are the screenimg tests, some are personal detail related. One of my forms covered questions related to autistic traits. I took 1-2 weeks to fill this in as I thought of things. I researched things online, then thought back to find evidence, which took time. I don't know how common this is but it removes the pressure to try to remember stuff as they have read it all in advance.

    You have one or more sessions. I had one to talk about my life and background in general, and one about the autistic traits. They clarified any points from the answers I supplied and I could raise anything else.

    The sessions were steered conversations, not an interview. They stop you from rambling, or going off topic and wandering into special interests.

    I also did the ADOS-2 test, which is a session with a behavioural expert, you do some simple tasks and talk a bit about your life.

    There is no pass or fail. I think it may be  possible to fake being normal if you are good at masking and wanted to, but you need to just relax and be yourself, I think it is harder to fake being ASD. They look for consistency, it is about what you don't say, how you phrase things, what you talk about, not just claiming to have some traits. It is better to all be done face to face.

    I thought I had done too well and might just be a quirky worried normal person. But they'd though I was positive from the initial discussion before we even started.

    How they handle absence of an informant is up to them, it should be possible, you should ask.

    There shouldn't be anything confrontational or awkward. They should want you to be at ease and talk. But I don't know Lithuania.

Children
  • This is so helpful! Thank you. 

    I already had an interview, which seemed along the lines of an assessment, really, as the therapist went down a list of checkpoint-type elements, and proposed to me theoretical situations. When I gave those answers more than a month ago, I had much less conscious awareness of my condition; in the meantime, all sorts of things have popped up. It feels like the moment when you learn a new word, and suddenly you see it in advertisements or announcements all around you in familiar places. It was always there, but it had no meaning because you did not know it. 

    I would answer some of those questions differently now, so I understand the reason your session gave you time to answer. In essence, that's what they're doing now. They had an initial assessment/interview, then told me they suspect autism but require a more thorough assessment, done by a different specialist, with whom I've yet to speak. My take on a question like, "What do you notice when you watch characters having a conversation in a film or television show," is completely different. In fact, I try to memorize the back-and-forth, and the difference between what they would say and what I would say, given certain questions. 

    What's fascinating is just how much of my day-to-day and moment-to-moment is different now. Yesterday, the vibrations of the shopping cart I was pushing over an asphalt car park made my entire body tense, and my hands felt like they were burning. What...I used to just ignore that? It's frightening and fascinating and just downright weird.