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Hi

Trev

Hi Folks,

I got my formal diagnosis of Autism Spectrum Disorder yesterday by phone (through the NHS), I should receive my diagnosis in writing with some detail in the next 5-10 days.

I asked for the assessment as I seemed to exhibit the characteristics of someone with autism and I had looked up the NICE guidelines and downloaded the research paper for the Adult Aspergers Assessment and completed the questionnaire as honestly as I could, then looked at the score I got which was just enough to meet the criteria - I can't remember if the assessment was either 2 or 3 years later, but the assessment was using ADI-R and ADOS and I intentionally didn't look up the research related those types of assessments as I didn't want to give answers based upon prior knowledge of the test.

I quite like making things although at the moment the project I'm working on is fixing an old van I'll be using to transport me and my electric wheelchair as it turned out to need rather a lot of work - I've fixed most of the faults on it, but still have some welding to do on it.

Best regards

Trev

Parents

  • Hi Trev - congratulations on your diagnosis and welcome to the community! 

    The NAS has a great set of articles focused on "after diagnosis" - including one covering how you might feel during the coming days / weeks / months - which you might find helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. In anticipation of that, you might find it helpful to borrow or buy this book. It discusses various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Immediately following my diagnosis, this book also taught me some important principles and enabled me to make some helpful changes - perhaps you might find it helpful, too:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

Reply

  • Hi Trev - congratulations on your diagnosis and welcome to the community! 

    The NAS has a great set of articles focused on "after diagnosis" - including one covering how you might feel during the coming days / weeks / months - which you might find helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. In anticipation of that, you might find it helpful to borrow or buy this book. It discusses various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Immediately following my diagnosis, this book also taught me some important principles and enabled me to make some helpful changes - perhaps you might find it helpful, too:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

Children
  • in reply to Bunny

    Thanks - I've had a bit of a read about autism in the psychology and neuroscience books I have (only a few pages of information and mostly about differences in brain anatomy and characteristics of those with autism), so I've ordered the books you have suggested.