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introduction, help and support

Missyd33

Hi everyone,

My name is Diane, I am a mother of two sons aged 9 and 12 and am married and work full time at a childrens hospice. My 12yr old joshua was diagnosed with Aspergers in Jan 2013. Me and my family moved from London to Kent in Aug 2013, joshua is also incontinent day and night, is dyslexic, suffers from CVS (cyclical vomitting syndrome) and also has huge anxiety issues. Since moving I am struggling to get the help and support my family needs to cope with day to day life with joshua, especially school! Joshua is not statemented and attends a mainstream school which he is struggling with as there is no support in place to help him cope, I have contacted various people and he is under CAMHS but due to long waiting lists no support is in place for us as a family. I would appreciate if anyone has any advice for me.

Thanks in advance

Diane Smile 

Parents

  • Hi missyd33,

     First of all, Welcome.

    I'm not faamiliar with your area, but i saw this on NAS and wondered if it might be of use to you. even if not call them as they maybe able to signpost you.

    www.autism.org.uk/.../support-centres.aspx

    I'm familiar with much of what you mention, as I have two boys on the spectrum myself. Can I ask, are you able to apply for a statement to support his needs at School?

    In my own experience, as the child moves up the academic ladder the potential for meltdown increases. This can be hugely helped if support is in place on the education front. It doesn't mean he has to change Schools if he's happy there and they can provide for his needs, but it will give more definative support in the identified areas of need.

    IPSEA would be the ideal people to guide you through the process.

    http://www.ipsea.org.uk/

    It sounds from what you say that he's already quite highly anxious. Do consider some alternative therapies if you feel he can manage them. They can have the effect of turning down the volume if anxiety is high. For my own son, we had to find our own councellor following a CAMH's assessment as the number of weeks support was very restrictive. (6 weeks only) Try and find an Autism Aware therapist if you can. Ours was highly trained (although I didn't know that then) and was the one who alerted us to his ASD behaviour.

    Hope my modest suggestions are helpful.

    Kind Regards

    Coogybear XX

Reply

  • Hi missyd33,

     First of all, Welcome.

    I'm not faamiliar with your area, but i saw this on NAS and wondered if it might be of use to you. even if not call them as they maybe able to signpost you.

    www.autism.org.uk/.../support-centres.aspx

    I'm familiar with much of what you mention, as I have two boys on the spectrum myself. Can I ask, are you able to apply for a statement to support his needs at School?

    In my own experience, as the child moves up the academic ladder the potential for meltdown increases. This can be hugely helped if support is in place on the education front. It doesn't mean he has to change Schools if he's happy there and they can provide for his needs, but it will give more definative support in the identified areas of need.

    IPSEA would be the ideal people to guide you through the process.

    http://www.ipsea.org.uk/

    It sounds from what you say that he's already quite highly anxious. Do consider some alternative therapies if you feel he can manage them. They can have the effect of turning down the volume if anxiety is high. For my own son, we had to find our own councellor following a CAMH's assessment as the number of weeks support was very restrictive. (6 weeks only) Try and find an Autism Aware therapist if you can. Ours was highly trained (although I didn't know that then) and was the one who alerted us to his ASD behaviour.

    Hope my modest suggestions are helpful.

    Kind Regards

    Coogybear XX

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