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Help!

Foofighter

Hi all, I'm mum to a newly diagnosed nearly 5 year old boy and feeling pretty overwhelmed. I'm trying to understand what autism is and how best to help my son in what seems to be a scary and confusing world. Does anyone have any recommendations for any particular literature/sites etc? Ideally something which is in plain English/laymans terms please! 

We've had a few meltdowns of late due to last minute changes of my work schedule as well some very scary moments thanks to his latest fixation with car logos. In a nutshell I'd hugely appreciate information/advice/common sense on life with an autistic child.

thanks in advance!

Parents

  • Hi!  This is a brilliant site, people are so friendly and coogybear is lovely, and so helpful.

    Congratulations on getting a diagnosis now, I know that may sound wierd, but is will give you more time to get the support in place that he will nedd as he gets older.  My son is almost 13, and was diagnosed at the end of 2012, and it has been an uphill battle getting schools and school nurses etc in.

    Your son will have a school nurse (even if he is a special school, like my son), she should be a bit like a spider in a web and she/he will be someone useful to get in to contact with.

    You need to go in to the school and request a meeting to arrange a CAF. common assesment framework in to place.  You also need to get them moving to get a statement in place, (or a DAF depending on where you are from), as these take about 6 months to do.

    Another piece of advice is, don't be afraid to speak your miind with the healthcare team.  They need a gentle nudge now and again, and unfortunately the way the NHS is rigged, the louder you are, the further up the list you get!

    Tony Attwood is brilliant as Coogy said, I also found freaks geeks and aspergers really useful. but that may not be relevent to you.

    Oh and cerebra might be able to help

    Lastly and most importantly look after yourself, your son needs you in his corner so take time for yourself.  Keep using this forum too as it is often very helpful

    Crazy

Reply

  • Hi!  This is a brilliant site, people are so friendly and coogybear is lovely, and so helpful.

    Congratulations on getting a diagnosis now, I know that may sound wierd, but is will give you more time to get the support in place that he will nedd as he gets older.  My son is almost 13, and was diagnosed at the end of 2012, and it has been an uphill battle getting schools and school nurses etc in.

    Your son will have a school nurse (even if he is a special school, like my son), she should be a bit like a spider in a web and she/he will be someone useful to get in to contact with.

    You need to go in to the school and request a meeting to arrange a CAF. common assesment framework in to place.  You also need to get them moving to get a statement in place, (or a DAF depending on where you are from), as these take about 6 months to do.

    Another piece of advice is, don't be afraid to speak your miind with the healthcare team.  They need a gentle nudge now and again, and unfortunately the way the NHS is rigged, the louder you are, the further up the list you get!

    Tony Attwood is brilliant as Coogy said, I also found freaks geeks and aspergers really useful. but that may not be relevent to you.

    Oh and cerebra might be able to help

    Lastly and most importantly look after yourself, your son needs you in his corner so take time for yourself.  Keep using this forum too as it is often very helpful

    Crazy

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