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Feeling misunderstood

Tonyelk142

Hi everyone - I’ve just joined the community having been recently diagnosed with autism at the age of 55. (I’m male btw and never posted on a blog before so apologies if this is all a bit disorganised!)

I’m still trying to make sense of my diagnosis. The main element I’m hung up on is the 12 score which I think means my autism is mild / high functioning but that’s not really been explained to me.

Now that I’ve had my diagnosis all my past experiences do seem to make more sense but I guess I still feel misunderstood - it seems no-one really wants to hear how I’m feeling or is showing me much empathy for what, after all, is a pretty significant life event.  I don’t want a shoulder to cry on as such but would love to know of support groups (either local or online) that would give me a chance to share my thoughts and provide some practical tips for living with this level of autism..

thank you in advance for all your support 

Parents

  • Hi, I was diagnosed last month at the age of 57, I was diagnosed with autism, no level was given, It seems to vary with different providers. I’m still slowly reading through the report, it obviously shows most of the things I’m not so good at. My ADOS-2  score was 19, it wasn’t really explained what it means. It just stated cut off 8.

    I’ve told my very close family but no response really, the biggest reply was a text,  “okay.” I’m lucky, I have a partner, she has become more understanding. My mother still can’t say the word autism, I think she would burst into flames, she will mention it as, “with what you have.”

    I just take each day as it comes and try to learn something from it, I recognise more of how I function as being autistic.behaviour.

  • in reply to Roy

    Thank you Roy - I’m still trying to understand my autistic behaviours but try to take the positives out of every day, especially with family interactions.

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