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Feeling misunderstood

Tonyelk142

Hi everyone - I’ve just joined the community having been recently diagnosed with autism at the age of 55. (I’m male btw and never posted on a blog before so apologies if this is all a bit disorganised!)

I’m still trying to make sense of my diagnosis. The main element I’m hung up on is the 12 score which I think means my autism is mild / high functioning but that’s not really been explained to me.

Now that I’ve had my diagnosis all my past experiences do seem to make more sense but I guess I still feel misunderstood - it seems no-one really wants to hear how I’m feeling or is showing me much empathy for what, after all, is a pretty significant life event.  I don’t want a shoulder to cry on as such but would love to know of support groups (either local or online) that would give me a chance to share my thoughts and provide some practical tips for living with this level of autism..

thank you in advance for all your support 

Parents

  • Hi TonyElk,

    Am very much in the same boat , 50 year old man with level 1 ASD confirmed last week . Think this is the old Aspergers diagnosis if I can use the term 

    I don't know about the 12 score but as you said all the past is starting to make sense but I want to be able to share with others my experience. Parents don't want to know , friends don't understand ,Autism  wife doesnt listen etc . Like you say not feeling heard at all , don't want a shoulder to cry on just a chance to chat

    So thank you for posting nice to feel we aren't alone and we have the Autism community for support 

  • in reply to Impreza

    Thanks Impreza and sorry for being a bit slow in replying - been on holiday and this week has been crazy what with returning home and then straight back to work.

    It’s so good to know I’m not alone in feeling like this.  My wife and I have actually found a therapist who specialises in helping couples where one partner has autism.  Still early days but I hope that will overcome part of the feelings I have for not being heard and improve our understanding of autism.

Reply
  • in reply to Impreza

    Thanks Impreza and sorry for being a bit slow in replying - been on holiday and this week has been crazy what with returning home and then straight back to work.

    It’s so good to know I’m not alone in feeling like this.  My wife and I have actually found a therapist who specialises in helping couples where one partner has autism.  Still early days but I hope that will overcome part of the feelings I have for not being heard and improve our understanding of autism.

Children
  • in reply to Tonyelk142

    Hi TonyElk , 
     I know the feeling   Sounds like we are all in the quick sand together , overwhelmed overworked not enough time in the day .

    Therapy sounds interesting , we had a chap through relate and although CBT not my favourite discipline he was a really nice chap and both my wife and got on well with him.I think he was an undiagnosed Aspie if I can say that. Good luck my friend