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Hi/quick intro

LaArisca

Hi everybody, I am joining primarily as a mother of (at least one) child with ASD. This may be slightly pre-determining his upcoming assessment but a positive diagnosis would not be a surprise. We actually had been wondering about his older sister pretty much since toddlerhood (we have ASD and ADHD in both my and my partner's families) but she is pretty high functioning (sorry if this is not the terminology - here to learn) and mainly struggles in new/social situations. Little brother has been delayed on every development milestone and it is his lack of verbal communication which has set us on the path of the ASD diagnosis.

Here to learn from the experiences of others. Not overly concerned at the moment - just want to get the tools and support in place so we can help our boy develop and progress as well as he is able, but can't lie that I am slightly anxious about future scenarios like when he starts school.

Thanks!

  • in reply to profdanger

    Thank you so much for your detailed reply :) Part of me just wonders if it will all just click for him in his own time. Socially he is fine - loves being around people and is very happy. So we might just have to wait and see (not looking forward to potty training though!)

  • Welcome! Glad to hear from you!

    I have a daughter (C, age 7) who has ASD & ADHD like me and another daughter (R, age 4) who is probably NT, but we’re not completely sure. C was very delayed in her milestones, particularly speech as she babbled for much of her toddlerhood. R met every milestone. With R, we mostly have concerns about how rigid she is, because she has to have everything perfectly in order at all times (we’re wondering maybe OCD or ASD?).

    LaArisca said:
    (sorry if this is not the terminology - here to learn)

    Thank you for being open to learn! I personally prefer to use the terms high support vs low support, but there’s still quite a lot of people even in the Autism community that use functioning terms. The difference is that everyone with ASD needs support, it’s just a matter of how much, whereas functioning terms can sometimes belittle the potential of people with greater needs.

    LaArisca said:
    but can't lie that I am slightly anxious about future scenarios like when he starts school.

    That’s totally understandable. With C, we were scared about when/if she’d make her milestones before school, but she managed to start speaking and potty training just in time (though both were a struggle, for sure). Now while she still struggles socially (she’s in a class for students with emotional/social issues at the moment), she’s beginning to become pretty advanced in reading and math. All that to say, it’s totally fine and normal to be worried during this phase, but with the right support your child will grow just fine in his own way/time.

    Again, it’s great to meet you and welcome!

  • Hi and welcome to the community!

    You might find the advice here helpful in preparing support for him when he starts at school:

    NAS - Education