Howly parkner

Sorry for the weird title, it’s from my favourite tv show Stath Let’s Flats and I like to use the phrases from it when I can! I’m a 42 year old woman and waiting for autism and adhd assessments. Things are starting to make sense after 42 years of feeling different, being called weird and not understanding why I found many things a lot more difficult than other people,  although I’m still getting my head around lots which is why I’m here.

Quick question: did you request adjustments/support in work, study etc before diagnosis? 

Finding it difficult to tell people about waiting for assessment and potential/likely audhd diagnoses as I feel like many people are dismissive of this, especially in women and especially pre diagnosis.

Anyway, hi and sorry for such a long intro. 

  • Hi and welcome to the community. I'm a woman in my sixties and I enjoy reading and playing video games. I'm not officially diagnosed, but got adjustments in my workplace by explaining that I had sensory issues. I'm retired now and glad I don't have to work any more.

  • Hi and welcome to the community and thanks for the intro, I can’t say I’ve heard of the programme or the expression, is it some kind of US thing?

  • Hi,

    While I was on the waiting list for a diagnosis I got an assessment done by the disability support people in my uni and they agreed I was almost certainly going to get diagnosed as autistic, so I got support during uni. Once I got the diagnosis it got updated to say I definitely had it, but it didn't before hand. 

    In my area there is a screening appointment before the first appointment to decide if it's worth getting a full assessment and as I had passed this they were happy to accept that. 

  • Dear Simmy, 

    Welcome to the Online Community. 

    You may find our employment information on the National Autistic Society website of interests to you. In particular, our advice and guidance about 'deciding whether to tell your employers you are autisitc': https://www.autism.org.uk/advice-and-guidance/topics/employment

    I hope this is helpful. 

    Kind Regards,
    Rosie Mod

  • Hello there simmy! Welcome to the forum.

    In my case, I did not request accommodations in the workplace before diagnosis because I didn’t learn until after I was diagnosed with Autism that I could even do that lol. It could be tricky, but not impossible, to get an employer to allow for adjustments based on a hunch that you have Autism/ADHD. I imagine that since you are a woman, it’s probably even more difficult, unfortunately. However, not impossible!

    Do you have a timeline on when the assessment is going to take place?