support for children waiting for a diagnosis

  1. I am autistic with aspergers and when i got support it wasnt very supportive they took me out of classes to show me flashcards of emotions which i already knew and poked me in class when i stopped writing to think and talked to me like i was 2 despite having the intelligence of a 16+ year old at 8 years old according to their tests and their singling me out all the time got me extremely bullied I never got help for my anxiety or disorganisation or navigating social situations etc I just had to figure that out the hard way. So I ended up hating my family for getting me diagnosed and vowed to myself I wouldnt do the same for my child. Now that I'm older I have a child of my own she has both my aspergers and her dads adhd and its like having a clingy toddler I'm raising my child alone and she can get so violent like her dad which is why i left him. I wanted to try to raise her without support unless I knew i couldnt handle it and when i knew I couldnt handle it i submitted the form 6 months ago to get her diagnosed but I was told its a 3 year waiting list. I started pay 35 pounds a week for therapy sessions which my child loves and theyre helping. I've just been told my apprenticeships coming to an end and theyre not keeping me on. I cannot afford to spare 35 pounds a week on pure benefit money until i find another monday to friday job (need my weekends off as a single parent to a severely autistic child i can't miss the only time we spend together- so its making it hard to find work) and want to know if theres any financial help I can get toward it and if so how to go about it.
Parents
  • For further information my child is 10 not sure if that helps. She will be in high school by the time she gets a diagnosis. The SEN teacher at her primary school agrees with me that she has ADHD she struggles to sit still in assemblies and weren't sure if she would grow out of it but even when I was in the doctors office requesting an assessment he said he observed that she hadn't stopped moving and fidgeting the entire time so had multiple professionals agree that she needs help but I just can't get it

Reply
  • For further information my child is 10 not sure if that helps. She will be in high school by the time she gets a diagnosis. The SEN teacher at her primary school agrees with me that she has ADHD she struggles to sit still in assemblies and weren't sure if she would grow out of it but even when I was in the doctors office requesting an assessment he said he observed that she hadn't stopped moving and fidgeting the entire time so had multiple professionals agree that she needs help but I just can't get it

Children
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