Hello!

Hello Everyone,

I'm a 51-year-old man who has self-diagnosed as autistic. I'm on the pathway to a formal diagnosis but of course it will take years. I have cleared the first few hurdles and would be surprised if I didn't get a formal diagnosis.

I have always suspected I was 'on the spectrum' and have often heard people say as much. Recently I've become more interested in this because my teenage daughter is clearly autistic. She doesn't have a formal diagnosis either and has been a bit resistant to asking for one.

I've always had great difficulty with social interactions and am much happier writing than speaking. I have some of the classic special interests (particularly chess, which I can spend whole days on) and the need for order and control in my environment. I am anxious 90% of the time. I believe both my parents were autistic. All three of us found it hard to make and keep friends and are/were prone to social faux pas.

Since the penny dropped for me that my daughter and I are autistic I have been reading everything I can about it. It explains an awful lot in my own life, and much in my daughter's, especially as she gets older. I think I have the condition that would have been called 'Asperger's' in the past. My daughter might be a bit further along the spectrum.

I am interested in learning about how to accept autism and change my lifestyle to 'go with the grain' of it. My instinct is that I might be able to make life an awful lot easier for myself and my daughter if we learn how to live as autistic people instead of trying to pass as neurotypical.

I hope to join a local group and meet other autistic people and learn more about all this.

All the best,

Richy

Parents
  • Hi Richy and welcome to the community!

    I'm on the pathway to a formal diagnosis but of course it will take years.

    If you live in England and are either currently on, or are pursuing a referral to be placed on, the NHS's own waiting list (ie for an assessment to be carried out by the NHS itself), then you might like to ask your GP about re-referring you using the Right to Choose pathway (RTC), which you are entitled to use instead if you wish.

    In England (only), this enables access to certain, approved, private autism assessment providers who typically have much shorter waiting lists than the NHS, but with your referral and assessment still fully funded by the NHS. 

    I was on an NHS waiting list for two years before I learned about RTC and switched to it (on the recommendation of an NHS psychiatrist). My assessment and diagnosis (I chose to use Psychiatry UK) then followed around just four months later.

    Some examples of RTC providers are listed here, along with some further explanation.

    More information:

    NAS - How to request an autism assessment

  • Thanks Bunny. Alas, I'm not in England, so I believe I'm at the mercy of the Welsh waiting list.

Reply Children
No Data