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Hello, daughter currently awaiting an ASD assessment

lottie4321

Hello, 

my daughter is currently awaiting an ASD assessment I have always been told it was going to be a long wait but I didn’t expect this long I’m looking another 2-3 years for an assessment 

I keep being asked questions on why I’m so pro for having a diagnosis as it’s something she will be with for life yet it’s something that’s been pinned to her since the whole referral process started two years ago! My daughter is under every service and specialist I can get her under I have been advised when meeting with drs out of the service to make them aware she’s on the pathway most look at me like I’m saying it for the fun of it and when I don’t alert drs I’m then questioned if she has sensory issues it would be nice to have a diagnosis so I haven’t got to explain her I have been advised to carry the report from the paediatrician to show other health professionals proof it all seems bonkers to me 

I call for help and advice and end up going round in circles or I’m made to feel like an inconvenience and put the phone down feeling lower than I did before and wish I never voiced my struggles 


it’s a funny old ride 

Parents

  • You may find the same situation even with a diagnosis. The sad fact is that many doctors have no idea what autism really is,how it affects you, or how to talk to you and understand health experiences that we have.It is indeed a long  ride which some of us will find lacking a satisfactory ending. Good luck in your journey.

  • in reply to NAS51275

    I’m honestly gobsmacked how bad things are! It’s a long lonely road it’s such a shame things are like this 

    I’m just praying things don’t get any worse with my  daughter she’s very young still and I feel masks as she’s a different child at school compared to what I get at home i feel this is what’s letting her down as I was told at our appointment she’s ticking some boxes but not all I’m left thinking what does that mean? I’m wasting my time 

    If that’s the case of ending I feel they have taken 2 years of my daughters life away as it’s been full of chasing and appointments 

    they will need to support me with the toe walking before this causes anything 

    thank you for your reply it’s so lovely to speak to new people and let it all out 

Reply
  • in reply to NAS51275

    I’m honestly gobsmacked how bad things are! It’s a long lonely road it’s such a shame things are like this 

    I’m just praying things don’t get any worse with my  daughter she’s very young still and I feel masks as she’s a different child at school compared to what I get at home i feel this is what’s letting her down as I was told at our appointment she’s ticking some boxes but not all I’m left thinking what does that mean? I’m wasting my time 

    If that’s the case of ending I feel they have taken 2 years of my daughters life away as it’s been full of chasing and appointments 

    they will need to support me with the toe walking before this causes anything 

    thank you for your reply it’s so lovely to speak to new people and let it all out 

Children
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