Female & late diagnosed AuDHD

Hi everyone Wave tone1 

I was diagnosed with Autism and ADHD last month at the age of 40! Previously I have been diagnosed with OCD, anxiety and depression (of course!!!) when I was 19. 

I am still processing the dual diagnosis and trying to be more ‘me’ after a lifetime of masking but I’m finding I feel more autistic and ADHD than I ever have before. I’ve read this is fairly common and a normal response to a diagnosis so am not concerned but I would really like to meet people who are in a similar position to myself, who’s minds work in a similar way to mine.

Looking forward to getting to know some of you! Blush 

  • Hi Lady_J84. Just signed up to the forum today, after my autism diagnosis last week at the age of 49. Now I need to start the process for ADHD (it'd be nice if I could have some help switching off and actually getting some sleep)

    I'm hoping to get to know folks, and find out who I actually am!

  • Sounds like I’m talking to a mirror, lol. My mind would never shut off as a child. I would play with my pens on my desk pretending they were people and I couldn’t focus on math testing if my life depended on it. Once I was put on Adderall it fixed it pretty well, but I still have significant issues with focus/hyperfocus.

    My Mum was convinced it was because I drank diet coke

    LOL! My mom’s never disclosed where she thinks my Autism/ADHD comes from, since there is no one in the previous generation that is OBVIOUSLY AuDHD, but given her political status and the area we live in she probably currently thinks it’s because I was vaccinated Expressionless

  • Yeah! that's the name ADD!, it was around 1989/1990. My Mum was convinced it was because I drank diet coke EyesGrin. We actually lived off of it, because she didn't trust the tap water...Ironic...but that's another story Slight smile 

    I wasn't hyperactive, very active though...and kept having meltdowns and talked excessively, racing thoughts and ideas, over active mind couldn't swich off etc

  • AuDHDer here, too. It’s actually super common for women to go under the radar for Autism/ADHD. We had to basically claw and scratch our way to getting a diagnosis for our daughter who is very obviously also AuDHD. The school system we were in kept trying to slap on other, less-fitting diagnoses on her.

    Are you by chance talking about ADD (Attention Deficit Disorder) for what it was called in the past? That’s what I was originally diagnosed with because I didn’t fit the “hyperactivity” part of ADHD. That was back in the late 90’s early 2000’s though, so maybe it was something even more different in the 80’s?

  • I found out I'm Autistic last year female aged 44 and combined ADHD in the 99th percentile last week.
    For some reason the Autism diagnosis didn't affect me too much and I recovered from that surprisingly quick. But the ADHD, that has hit hard. I think because it can be medicated and somewhat assisted.... whereas Autism cant. So any type of medicated intervention in the past may have mitigated or stopped a lot of my negative experience with life etc.

    Plus I just feel like everything about me is now a certified conflict, I feel like I shouldn't even bother with anything because anything I start is really just some form of self sabotage.

    The results were kind of just dumped on me too, and although I was informed by the assessor in March that I likely have ADHD, she didn't go into great detail. Then a night before me going to a follow up, my detailed results were sent via email. I read them on the morning of my appointment and had to cancel, because as I said... it hit like a ton of bricks. I haven't  been medicated. I have to wait at least another month for that, which is really affecting me.


    I'm new here today so sorry if I made this too much about me, I'm still navigating this site. I only found out AuDHD was a thing from the assessor.

    One last thing, back in the early 1980s my Mum tried to get me diagnosed for ADHD, it was called something different back then. She was told I couldn't have it and the testing never transpired.
    Like you I also had the standard ocd, severe depression, social anxiety labels, that I've noticed is a trend of diagnosis sprinkled on women.

    I see you posted this 18 days ago, has anything changed for you since?

  • I went through this in January and am having a dip in how I am feeling after the inital euphoria.  From my experience, I wish I had sought counselling or therapy right after so I could digest it more and talk about it more.

  • I think your reaction is quite common - I was diagnosed relatively recently and I’m in my 50s - I feel it’s subtly encouraged me to ‘allow myself’ to be more myself (and that means ‘more autistic’ in my case). This has been positive in many ways, but also has some negative consequences too. Like most things it’s complicated - but I definitely don’t regret getting the diagnosis. 

  • Hi and welcome to the forum Lady_J84 Grinning

  • Hi and welcome to the community

  • I guess that feeling you describe of 'feeling more Autistic and ADHD than I ever have before' is that validation kicking in. 

    Some people need that diagnosis, that final confirmation as the final piece of the jigsaw.   Others here are self-diagnosed, whereas some are awaiting a diagnosis.

    I was diagnosed with Aspergers, which isn't current terminology, as you are probably aware, and I know full well I have ADHD to go with it.  I've taken self-administered tests, and to be honest - that's enough for me.  I don't feel I need validation on that one.   I do however have diagnoses for anxiety, depression and complex PTSD - so I feel I've enough to contend with.

    The NAS has produced a page entitled 'After Diagnosis' which you may find useful.   

    https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/after-diagnosis

    In truth though, I find hearing about the experiences of others - and reading parts of their life stories can be exceptionally beneficial too.  There are plenty of people here who have stories to tell that you may find similar to yours.   You can search for some using keywords from the homepage too.  

    Welcome to the forum.