11 year old disagrees being placed on the autistic pathway

Hello,

My 11 year old daughter was put on the ADHD and Autism Pathway, at the recommendation of her school teacher, 6 months ago. This made sense to me, and answered a lot of questions (sensory struggles, emotional and social struggles). CAMHS have done the initial assessments, spoken to my daughter and have read the teachers reports. They said there is significant evidence to continue with the assessment. My daughter is very much against the idea. She says she 'knows her own brain' and she does not want, and doesn't have autism and never asked for this attention.

I want to give her as much help and support as possible. A bit of background - she has had a terrible year at school, about 4 months ago she was assaulted violently on the school playground by a boy (she had her hair ripped out, and punched repeatedly, and shoes thrown across the playground)  As parents, we tried everything to help her - we went above school authority to get the boy expelled (didn't work), we went to the police (didn't get far as there was no cctv), we reduced her school hours to half because of her mental health, and I didn't feel that she was safe in school. Even so, the bullying continued from other children... physical and verbal, including knife threats. My daughter was self harming before this incident, and increased after, she even talked of suicide in school. At this point we said enough was enough and we removed her from a school setting for home education. Eventually, a school said they had a place for her, and it's been wonderful to see our daughter thrive again. 

So as you can understand, my daughter is desperate for her fresh start and put all of that behind her. As she said, she wants 'no fuss'. Today I gave her a book for autistic girls, at the recommendation of her teacher, and it looked great - really relaxed, and written by a teenage girl. It didn't go down well. I have explained how amazing she is and told her to give the book a go, it may help. She got quite cross with me, and she said she didn't need it, and she doesn't think she has autism. I don't want her to feel like I'm pushing something on her. However with her high school transition coming up, the pastoral team want to speak with her about how they can help... seems like that would only upset my daughter more. I have told my daughter that CAMHS said they want to continue on the pathway, but I understood how she felt and I didn't press the matter. 

I get it, it's not like she's going to have a blood test for Autism and get a result! My hope is for her to understand herself, and get passed the negative ideas she has about herself. Am I pushing this on her?! Our close family member is a teacher and said there is definitely a neurodivergence there. Family have made less helpful comments about 'everyone being labelled nowadays'. Personally, we feel like it would be remiss of us as parents, not to go as far as CAMHS wished to. I read about a lot of teens feeling relieved when they get a diagnosis.... but it's just not my daughters experience... so far. Any tips would be greatly appreciated. 

Parents
  • Children, and it gets worse in the teenage years, unfortunately, want nothing more than to fit in with their peers. The greatest ambition of most autistic children is to not appear unusual, not to stand out. This is understandable given the prevalence of autistic youngsters being the victims of bullying, as you have, sadly, found out yourself. Being labelled as 'something other' can be perceived as making things worse, and to be shunned at all costs.

    Many adult autistics come to appreciate aspects of their difference, and become proud of their autistic identity. However, this cannot be forced on anyone. Your daughter obviously has a very negative view of autism. Making her aware of the very many autistic people who are talented and successful people (Anthony Hopkins, Tim Burton, Greta Thunberg etc.) and those truly great people of the past who showed autistic behavioural traits (Albert Einstein, Charles Darwin, Isaac Newton, Mozart, Picasso etc.) might help her to gain a more positive view of autism.

  • Thanks for your thoughts, that is so true! My daughter is my eldest… it’s a steep learning curve for me entering the pre teen years. Like you say, it can’t be forced, she is having her own experience. It may just take some time, and it’ll be in her own way. 

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