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What do you wish you'd known about autism right after diagnosis?

Aiden

Hello! I'm Aidan and new to the community, I was diagnosed about four days ago.

I'm trying to learn as much as possible to try and adjust to it as quickly as possible. So I'm just interested about what knowledge or support services that you may have now but wished you'd had right after diagnosis?

I'm just trying to get it all understood quite quickly.

Thanks for any responses and it's nice to be fully diagnosed and here!

Parents

  • Welcome. I was diagnosed just before Christmas so I'm relatively new to this as well.

    I think research is the key along with self exploration, I found talking to a psychologist helpful, thankfully I have Bupa insurance as waiting for the NHS is desperately frustrating.

    I wish there was more specific ASD help within the mainstream NHS as accessing it seems a bit of a lottery. I was using a NHS mental health clinic as I have issues with low mood and anxiety, as soon as I told them of my assessment they discharged me as I have a neurological development condition and not a mental health condition, obviously I'd been magically cured by my assessment.

    Be kind to yourself, try and find time to understand what impact autism has had on your life. 

    For me, I'm trying to separate myself from my diagnosis, I am autistic person, it is what I am but not who I am. (If that makes sense)

    Good luck and take care.

Reply

  • Welcome. I was diagnosed just before Christmas so I'm relatively new to this as well.

    I think research is the key along with self exploration, I found talking to a psychologist helpful, thankfully I have Bupa insurance as waiting for the NHS is desperately frustrating.

    I wish there was more specific ASD help within the mainstream NHS as accessing it seems a bit of a lottery. I was using a NHS mental health clinic as I have issues with low mood and anxiety, as soon as I told them of my assessment they discharged me as I have a neurological development condition and not a mental health condition, obviously I'd been magically cured by my assessment.

    Be kind to yourself, try and find time to understand what impact autism has had on your life. 

    For me, I'm trying to separate myself from my diagnosis, I am autistic person, it is what I am but not who I am. (If that makes sense)

    Good luck and take care.

Children
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