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Tish

Hi,

I was a member years ago and then sort of lost track due to a number of other family issues.

My son was diagnosed at the age of four with autism and learning difficulties and social impairment.  He is now 21 and after years of special schools the local authority cutbacks hit.  

He is now in a special section of a mainstream college with only one year to go and that being only 16.5 hours a week.

He still cannot feed himself, wash, shave etc.

As soon as he hit 20, everything stopped.  Yet, as a family, our circumstances continue to remain the same.  Just because he has become an adult, he isn't miraculously cured And no longer in need of help.

I am at my wits end as instead of things getting better, they are getting worse and the outlook is somewhat bleak.  I have two other family members to now care for and I don't know whether I am coming or going.

Sorry for the negative introduction :-(

Parents

  • Hello Tish, and welcome.

    I have Asperger's, so am more 'high-functioning' in some ways than your son, but I can completely relate to your concerns. At 26 years old I am still battling myself for decent therapy to help me manage my anxieties, and keep on getting fobbed off. Your story will resonate with many people on here, as it is a recurring theme, and it makes me very angry. Autism is a life-long condition, the issues never go away, but we are so often told that eventually support will come to an end!!. Needs don't matter anymore, it is all down to money.

Reply

  • Hello Tish, and welcome.

    I have Asperger's, so am more 'high-functioning' in some ways than your son, but I can completely relate to your concerns. At 26 years old I am still battling myself for decent therapy to help me manage my anxieties, and keep on getting fobbed off. Your story will resonate with many people on here, as it is a recurring theme, and it makes me very angry. Autism is a life-long condition, the issues never go away, but we are so often told that eventually support will come to an end!!. Needs don't matter anymore, it is all down to money.

Children
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