Navigating a recent late diagnosis

Hello everyone,

Last year at the age of 42 I succumbed to my second severe burnout, which led me to finally look beyond the ill-fitting and incomplete labels of 'introvert', 'INFJ' and 'HSP' and start to accept that autism was the grand unifying theory that made me make sense.

To be honest, I wish I could say that I felt the relief that some report experiencing following a diagnosis. I am still in the early stages of the grieving process, and I am severely struggling to reframe and reorient my life in a way that aligns with this new reality.

There are so many complex reasons why I am finding it so hard. No doubt there is a lot of internalised ableism to de-programme. I also feel like I have spent my whole life levelling up a socially acceptable avatar while neglecting and suppressing myself and my undesirable traits - traits that I that I expected to simply grow out of, or overcome through brute force by changing my circumstances (jobs, partners etc) and therapy to make me 'less sensitive'.

Of course none of these strategies paid off, hence why I am now in a state of burnout and unsure about how to make the transition to a sustainable life post-diagnosis. 

How have other people navigated this turbulent and traumatic time? I don't even know what it's like to be properly unmasked. I don't know how to behave anymore, I'm trapped oscillating between the avatar and a huge question mark.

I have a therapist still, and I have told some close people. But I am not getting the support I need, and I don't think I can plot a course through this on my own without the guidance of people who know what this feels like. It is such a lonely experience, so any advice, guidance or friendship that people can offer would be life changing.

Thank you.

Parents
  • Hey dude,

    Omg, reading this is like listening to a twin. Absolutely same here. 

    However,  I’m aged 25. I don’t know where you come from, but I come from one of the worst possible places to be autistic in the world. I also have ADHD. So for me being autistic as difficult as it is for a normal human being was 10 x more difficult for me. In fact I will soon be going on the BBC to tell my story, supported by a local and international charities, organisations and etc, but I would absolutely love it if fellow brothers and sisters want to join me, I know that you don’t even know me, but let’s not forget the one thing that connects us on a deeper level than it would ever connect any lovers, family members, or friends - WE ARE THE 1% - AND NO BOND IS STRONGER THEN THAT. 

  • Hey, thank you for responding. I'm glad to hear that what I said resonated to some extent - but of course i'm very sorry that you have experienced these difficulties too.

    Where are you in the world, if you don't mind me asking? It is challenging enough to get support and acceptance here in the UK, so I can't imagine how hard it must be elsewhere.

    It's very exciting to hear that you're going to be on the BBC - will you be in a documentary, or appearing on some other show? 

  •   is very new to the group It will be fascinating to read the response to such an unusual post...  :-)

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