Newbie just starting on diagnostic treadmill

apologies for the large font format. I have varifocal glasses so when i become the cats hot water bottle & have to move the laptop, the text is then in the wrong place to see small letters!

Hello there,

50+ with 2 adult sons diagnosed ASD as children. The eldests paediatrician said “normally i say this to the Dad but in this case, sorry Mum he gets it from you”. That was 25 years ago, and it was a lightbulb moment as i came to realise why i had always found school (head like a weathercock) college (accused of cheating after the first round of exams because i would never answer out loud in class) & life in general so hard (generally like cats more than most people & phone-phobic). At least it meant i could cut myself some slack as to why i just did not ‘get’ most people.

I have also always had a problem with hearing but performed perfectly at a hearing test in a soundproofed environment. i actually burst into tears when the audiologist told me I had A1 hearing. “But why can’t i hear?” i wailed. A few probing questions later and she told me it sounded like i had an issue with auditory processing and that a hearing aid cannot help with that. Another lightbulb moment.

That was 4 years ago, so why seek assessment for myself now?

4 years ago we were still in aftershocks from Covid and i had been on the shielding list (other medical issues). COvid gave me a great excuse to avoid people, and not wanting to burden the NHS gave me another excuse to avoid further assessment. I am a great avoider.

I only asked for my hearing to be tested for the sake of my marriage; my husband had got so exasperated, yelling “when will you get your ears tested, you’re *****ing deaf!” after i had asked him to repeat something for the 5th time. I happened to be standing next to a near boiling kettle making the drink he had asked for but hey ho! He was actually a real sweetie, but even he had his limits.

And i have gotten off topic again, sorry.

i have been called for Jury duty, and am in a state of severe anxiety every time I think about it.

I went to my GP practice and told them i was worried about not being able to hear in the courtroom, and told her what the audiologist had said about the processing difficulty. I was told that wont excuse me from Jury duty, and that it is quiet in the courtroom, and only one person speaks at a time, so i should be ok. Oh and i am being referred back to audiology, even though the GP agreed that it sounded like i should have an assessment for ASD, but there’s a 3-4 year waiting list for that and they can’t even put me on the waiting list unless i have had a hearing test within the last 2 years.

Of course i neglected to mention that it terrifies me, that i feel nauseous just thinking about it (am near hyperventilating typing this), am on anti-depressants, have mobility issues, have a sleeping disorder, have social anxiety, and my ability to ‘put a smile on’ depends upon my energy levels (and this time of year i am utterly exhausted). And that’s without the huge worry that i could make a mistake in judgement and ruin someone’s life simply because i heard wrong. That really weighs on me.

i have already sent the forms back to Jury Selection so i cant add anything now, but at least i can email them. It would just be so much easier with a diagnosis rather than have to go into detail about what i have problems with. 

ANYway, i found myself here as it is a long time since i hit the research button on ASD/ ADHD/ Aspie/ pragmatic language impairment etc and had no idea there were so many (ahem) older neurodiverse people. 

Crumbs, i was only gonna say hi. 

Sorry about that. 

I do have a question though - am i the only one here that finds Big Bang Theory funny? I worked in various laboratories for 20 years (though in chemistry rather than physics) so that may be why. I saw many former colleagues in the various characters over the course of the show.

nite nite everyone

Kz

Parents
  • am i the only one here that finds Big Bang Theory funny?

    It is good and while the characters are not explicitly autistic they do exhibit plenty of autistic traits to good comedic effect.

    I've heard some people here complain they did not do enough to make an accurate representation of autism but in our native form we are not really very entertaining to the masses so I think this halfway house is a still good exposure for us.

    Many of the symptoms you discuss do have strong indications that they could be autistic - difficulty with multiple audio inputs is a classic, demand avoidance another, social isolation, anxiety and academic high achievement others.

    If you want to give a stronger indication then I would look up Free Online Autism Test For Adults and try one or two of these and take some of he tests. I would make a note of your answers as any formal test will ask more or less the same questions and it can save you having to re-visit it each time.

    Should the results strongly indicate autism then you can opt for a private assessment - people have quoted £1-2k for these athough I think mine was about £600 4 years ago.

    Waiting times vary significantly so you may want to shop around, but the advantage is that if the assessment confirms your suspicions then you will have the knowledge of the real root causes to your issues, can find ways to cope better with them, can tell your husband to be more understanding and even write to the dury duty and ask if you can be relieved of the duty on the basis of the diagnosis.

    If you want out of the Dury Duty then I would ask you assessors to include a note in your diagnosis to the effect that you have auditory processing issues. Point out this will affect you if there is cross talk in court or in the debating phase of the dury deliberations. I think it will be enough.

    All that said, please remember that I am just some random off the internet and you should never act on the basis of any recommendations without doing your own research.

    No medical advice has been offered here, just the ramblings of an autistic mind Slight smile

  • Hi Iain, hope you don't mind me asking but what is demand avoidance, I have seen it mentioned but not entirely sure what it means?

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