Hello everyone. I am a single parent of 2 boys 9 and 8. my youngest is the reason I have joined this Forum. i have been asking for help for a few yeears now due to his increasing anxiety, meltdowns that are increasing in intensity and violence towards me and his poor brother. and so many other things. I had been referred to a paediatrician 7 months ago.
The school present my son as a model student with confidence issues and low self esteem. Despite the numerous times I have stood at the heads door again to report real concerns about his behaviour, inability to make friends, constant bullying by a group of boys (one of which is her son). The fact that he comes home with messed trousers with his refusal to open his bowels any ware at home and if he does go for a wee, wet trousers from sheer panic and fear of the toilet. He self restricted diet and now his visions of peoples faces changing in the playground. He seems to thrive for the routine at school but bottles up all the pressure like a shaken can of pop and explodes at home.
the paed read the schools form and only about my families mental health and nothing else. 15 mins later I was told he made good eye contact he spoke to her and she will not label him but will refer him to cahm.
and so it carried on visits to the school, school nurse, senco, and Long waiting list for camhs.
last week I phoned the gp in desperation, he has been hearing voices, he is afraid of his own shadow and sees peoples faces changing he has violent melt downs and was seen at Cahms 2 days later.
amazing man asked me loads of questions and spent 2 hours watching him and said confident with spd symptoms poss H f a signs and just reassurance I am not going mad. but needs a full assessment and that means only option was to be referred back to the very same paed who brushed us off. His hearing voices and visions are apparently rare but wouldn't.t link to family history (cousins and sister with schizophrenia) And cos of my postcode no appropriate OT to refer to for his spd. He did say however that if all else rules out he wants to see him again. The things my son does and doesn't do, likes or runs from is too long but I do know he does make eye contact, he does want friends but is unsuccessfull all the time taks every word literally and is becoming depressed and more anxious. He has nightmares and sleepless nights forever.........
sorry for the long post but as u can guess just a parent who seems to be coming up against so many brick walls.
