Grandparents raising autistic grandchild.

Hi,

I was wondering if there are any other grandparents out there raising their autistic grandchildren? We are in our fifties and have been legal guardians to our 13 year old grandson with high functioning autism for the past 7 years.

He exhibits rigid, obsessive and often violent behaviours and as we age the problems don't get any easier. Its had a telling effect on our health and certainly our social relationships. Most of our old friends have dwindled away ...they are rightly enjoying their middle age without their now grown up children and are enjoying the new freedoms that it brings.

But life is frequently rewarding, fascinating and hysterically funny living with our grandson. He's bright, affectionate and has a cheeky sense of humour. 

We don't know anybody in our situation and would welcome the chance to swap notes and just chat with any grandparents out there who know what its like to be REALLY TIRED!!

Parents
  • Hi,  I am a singlemum to an almost teenager with Autism ( highish functioning) OCD and depression.  I wanted to say thank you for what you are doing.  My sons grandparents are amazing, and have my son a couple of afternoons a week, as he only goes to school part time.  I am so grateful to them, as I am exhausted, looking after a child with ASD is hard, but so rewarding, my son is so affectionate, and is lovely to have around and so funny on a good day. My parents are my only support, without them I would be on the floor!!

    I understand how tiring it is for you, and I don't know if you have someone to say thank you for being amazing grandparents, so I will.

    As a p.s. have you asked intergated childrens services to do an assessment, they can implement a buddy system (my son has a "big brother" who takes him out once a week during holidays, they can also organise respite care, so you get a break.

Reply
  • Hi,  I am a singlemum to an almost teenager with Autism ( highish functioning) OCD and depression.  I wanted to say thank you for what you are doing.  My sons grandparents are amazing, and have my son a couple of afternoons a week, as he only goes to school part time.  I am so grateful to them, as I am exhausted, looking after a child with ASD is hard, but so rewarding, my son is so affectionate, and is lovely to have around and so funny on a good day. My parents are my only support, without them I would be on the floor!!

    I understand how tiring it is for you, and I don't know if you have someone to say thank you for being amazing grandparents, so I will.

    As a p.s. have you asked intergated childrens services to do an assessment, they can implement a buddy system (my son has a "big brother" who takes him out once a week during holidays, they can also organise respite care, so you get a break.

Children
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