Intro... & request for help (bipolar, autistic, alexithymic - just diagnosed)

Good afternoon all.

I'll give a little of my history, as there's no point me just lurking when what I really want is to get some feedback/acceptance/support... won't get that by hiding at the back, so here we go!

I've literally just had an autism diagnosis after a psychiatrist from the NHS "crisis team" decided to ignore my bipolar manic episode and instead told me he thought I was autistic, suffering burnout and then just discharged me back to the GP. Bitter? Me?? Never ;)

The GP I was discharged to did a follow-up call and was so scared at my continued manic episode that she referred me back to mental health. I managed to ride out the manic episode and am now finally in the queue to get a meds review from a psychiatrist who hopefully won't spend half an hour dismissing my symptoms in favour of his pet subject. I have a partner at home who helped ensure not too much damage was done and together we managed to keep me out of hospital - woohoo!

However, that left the autism thing. My private medical covered a diagnosis so I dithered for about a month then decided to go for it. Bingo: I'm autistic (and reluctant points for the crisis team psychiatrist who might be rubbish when it comes to bipolar but had autism spot on). The diagnosis just confirmed something I've suspected for quite a while now (given family history, scores on the AQ50/EQ60 and strongly identifying with many traits). It's something I can certainly get on board with. Probably helpful to have more self-insight and useful for pushing for more workplace adjustments etc.

The trigger for my bipolar episode was stress induced burnout. Stress is a trigger for my bipolar and I've had issues before. I know that every few years I will usually have to manipulate work to give me what I need, or end up on long term sick while my brain sorts things out.

It's a familiar cycle and either I get work to change, or I take time away. My “time away” is simply a matter going into a "cocoon" to allow my brain to fix itself before something "gives". Without work changes, or time off, then something will always "give" - e.g. suicide attempt, self-harm, psychosis, mania etc. The process works - either I re-write my job profile back to where it should be, or I go off long term sick for a few months to recover enough to carry on with the existing mess.

Unfortunately the NHS in it's infinite stupidity has switched to an online triage system that requires a form to be completed telling the doctor what the medical problem is and how they can help - i.e. diagnose yourself and prescribe your own treatment. While drowning in stress and approaching burnout I was unable to cope with this complicated demand and so failed to seek help. This caused a full blown manic episode as my brain's only solution to the problems it faced. It worked and I'm now off work. Well done brain.

It also led to me doing some reading and I think I have Autistic Burnout rather than ordinary Occupational Burnout. I say this because I have significantly increased sensory issues, some speech loss and major executive dysfunction problems. I feel like I've had a brain injury and will need to "re-build from the ground up" before I can get back to work. I did have stress in other areas of life too, but without work to worry about I'm rebuilding.

The problem is that my income protection insurance company really, really want to push me into some kind of therapy. I hate therapy. Having alexithymia makes the "how did that make you feel" approach pointless, having an autistic "different thought pattern" means the CBT approach is harmful - i.e. I do not have a "disorderded/dysfuntional thought pattern" causing problems for them to "fix" - I'm just different.

Actually, work are the ones who are disordered/dysfunctional and that's why 25% of my team have had long term sick due to mental health crises in the last 2-3 years. They are the problem. I am not the problem. I do not need "fixing", or to change myself in response to their unrealistic demands.

My reading leads me to believe recovery from autistic burnout is a slow process where you need to be left alone to be in a safe environment with your own interests - i.e. my "cocoon" where I retreat from life and let my brain heal itself. However, at present it looks like I'll be pushed into unhelpful and unwanted therapy - any idea how to avoid this?

Also - yup, I know a cycle of stress/overwork followed by burnout/psychosis is not healthy, however I need to pay off a mortgage and retire asap. If the pattern stays the same then I'll probably only have to deal with a couple more mental health crises before retirement and I'd rather do that than have to work until I'm nearly 70. I can get work to change, but they always drift back to their old bad habits. Unfortunately I can't put our MD though CBT to cure his disordered thinking.

TL:DR - I need rest, peace and quiet to recover from autistic burnout but my income insurance company are obsessed with trying to “fix” me via active "therapy". How do I get them to stop damaging me and just leave me alone to recover naturally?

  • I have also just been diagnosed at 57... I never had any other serious mental issues other than anxiety but did get ME at about 32, weirdly I think this has in many ways this helped me. Whenever I get badly stressed my ME kicks in and I have to rest - absolutely no choice. I always thought in some ways my ME has protected me from the worst ill effects of my mental issues. It did not help with work though... sigh. I do hope you get the help you need, I was also told I need to be tested for ADHD at my ASD assessment but this felt less important at 57, although it would be nice to know I suppose.

  • I'm unsure exactly how much choice I'll get in the type of therapy or the therapist. This is something my income insurance company want, not me.

    Their plan is to try to use work-focused therapy to get me back to work asap. I want time to recover properly without being pestered and forced to talk about work for hours when I'm still not well. I need time in a safe environment without external pressure to allow my brain to heal itself. After a period of rest I will put together a viable plan for my return to work. This process cannot be sped up by inserting someone from occupational health to harass me.

    I won't even get into the damaging experiences I've had with therapy/counselling in the past. Those incidents are not pertinent to what the insurance company are proposing.

    It isn't about therapy to make me a "better person", or to help me live a "full satisfying life". It is solely an attempt to get me back to work before I need to claim on the insurance. I feel it will be counter productive and make a claim more likely because I am not currently well enough to spend hours chatting on the phone with a stranger.

    I appreciate some people want/need professional help to improve their lives. However, at this point I simply need work to make appropriate accommodations and stick to them.

    It is nice to know that *not all* therapists are as bad as the multiple ones I've experienced over the years though and I'm glad you found it helpful. 

  • I'm perfectly capable of analysing and assessing my own needs and advocating for them at work

    Therapy does offer a whole other range of benefits than just analysing your needs - a good chunk of it is looking into your past to understand why things happened, how they impacted you and if they need to be "processed" in a way to reduce the impact they still have on you today.

    There are also many practical tools like teaching you ways to connect to your emotions more effectively., find more effective ways to relax, understand some of your developed defence mechanisms and work out if they are unhelpful - then how to develop better ones.

    The list goes on and on - the vast majority if about finding ways to improve your quality of life and interactions in life.

    I was of a similar disposition to you when I was pushed into it by my wife and I can honestly say it has been exceptionally useful.

    Just make sure you find a therapist who is very well versed in helping autists and who is qualified.

  • Congratulations on your retirement and I hope you have a lovely time. It's my aim too.

    I've been with the same employer nearly 20 years, largely because I can get them to make concessions a lot of the time. Unfortunately they then begin a slow drift back towards "bad things" ie changing my role and responsibilities in ways that make the job less and less bearable. It is incremental, so hard to fight each little individual change, but cumulatively it becomes a real problem.

    It takes a lot of energy to reset the job back to something that won't drive me (literally) mad, but can be done. I have applied off and on for other roles internally, but for various reasons not managed to effect a move. Honestly I don't think a change of role would make a long term difference because the problem of role/responsibility drift exists throughout the company. 

    I can deal with work when I have enough energy to fight my corner and my spreadsheet has good projections for early retirement. My life is run via spreadsheets and it's all planned out.

    I wouldn't say more or less severe in reference to burnout. It's bad however it hits and I'm sorry you had to deal with it.

  • Thank you for the practical advice. Reviews of the book all seem good and it will no doubt be helpful if I'm forced down a therapy route. I appreciate some people like and value therapy/counselling, but I don't. I'm perfectly capable of analysing and assessing my own needs and advocating for them at work, I usually win concessions from them that make it ok, but then they always drift back to their bad habits. It's very much a "them" problem as when I don't have to work I'm happy and engaged with enjoyable things and generally life is good. Roll on retirement! Cheers again. 

  •  I am reading that book now, Autistic Survival Guide to Therapy and its phenomenal resource.

  • Hello and welcome to the forum.

    I'm Female, 64, married, and we're both retired.

    I had the same pattern of regular burn out from work, although not as severe as you. I used to move jobs regularly - I didn't stay in one job for more than 5 years until my last one, and I only survived that one for longer because I was able to go part time. Is changing jobs a possible option?

    We saved as much as we could so that we could both retire before our state pension ages. (He retired before me) We also sold the home we used to own (which we couldn't have paid for before retiring) and started renting. We now live very simply in a rented flat, but we don't have the cost of maintaining a home and also save money because we don't have a car (we don't drive) But it's worth it to not have to work.

  • I've literally just had an autism diagnosis

    In case you haven't seen them, the NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough
  • my income insurance company are obsessed with trying to “fix” me via active "therapy".
    The problem is that my income protection insurance company really, really want to push me into some kind of therapy. I

    Therapy (or counselling) - which is commonly recommended following an autism diagnosis - can still be helpful for us autistic people, but with certain important caveats, ideally including the benefit of an autism-experienced professional providing that support.

    You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy