12 year old daughter - family impact

Hi. I’m not sure if anyone can help me. I have a 12 year old daughter who I think is showing signs of autism but masks at school and isn’t getting any support. At home it’s a living nightmare. She is aggressive, angry, paranoid and we just go from one issue to another.  Not liking to eat with us anymore because we eat loud (we don’t), hardly communicating, being so paranoid about how her dad or bother look at her, storming off for no reason not wanting to be in the same room as anyone. Things are so much worse since she Started secondary school last year. She frequently leaves class, is so anxious about any tests or being called out for anything even if it’s good. Life is very difficult. 
we can’t do normal family things anymore. We’ve tried to get some help but it’s been impossible so we are paying for a counsellor to help with her rage but it’s not making a difference. 

is it worth a private test for autism? We will try and find the money but will it give us support if positive - and if not where can we get some? We are desperate. 

Parents
  • Hi there sorry to hear what you are experiencing but I can relate.  My daughter is 15 and we have been waiting for 21 months now for a diagnosis.  I wish we had got one earlier.  She has always struggled with the social aspect and pace of secondary school also the sensory overload of the environment but did well academically.  In the last 12 months her mental health had deteriorated significantly and the impact of dealing with a school environment was too much for her.  She now spends her life in her bedroom.  She barely eats and never leaves the house.  Had we known at 12 that she may have ASD we would have had her assessed sooner rather than later.  she is now refusing any kind of help.  So my advice to you is don’t waste any time get her assessment and then hopefully she will get the help and support she needs at school before it all becomes too much for her.

    Obviously the teenage years are hard anyway as a rule and that may get worse before it gets better.  I understand so much your feeling of helplessness all you can do it be there for her and take time out for yourself.  Our family life has changed drastically too so I understand that also.  I just posted on here about some advice also, but as you have time on your side so just get that assessment.

    i wish you and your family all the best x

  • I’m so sorry to hear what you and your daughter are going through. Thank for taking the time to respond to me and for giving me your advice - which I really appreciate. I wish you all the best and hope your daughter gets her diagnosis soon x 

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