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Family suffering ASD

millymolly

Hey all *wave*

We have slowly discovered one by one that most of our family as suffering from variying degrees of ASD,  I was the first diagnosed with Aspergers.  I have to say i cried and was sent away confussed and battered, being told to read book, google, and "maybe you should consider not telling people".  My Doctor said, there is no help for you really, you have got through life for the past 40 odd years, you will be fine.  My 27 year old daughter has not had an official diagnosis but our Dr has said that she has no doubt that she suffers ASD and although the NHS in our area offer no diagnosis for Adults, they will support her with cognative therapy.  My teenager is now officially diagnosed with ASD, she has thankfully been offered support and we are now contacting the school to ensure she has all the help she needs. I have mixed feeling about our diagnosis, and I am hoping to get some useful information and hopefully some support from joining with you all on this forum.  If you can offer any advice or suggest any books to read please message me, i look forward to hearing from people. We live in the south midlands area so if you know of any support or help we may get in the area that would be great, we dont do groups though, they are real difficult to attend.   If i dont respond straight away, please forgive me, i find that this is one of my weaknesses, having to digest and understand before i comment. 

Parents

  • Hi,

     I have two boys diagnosed with the condition and I've also learned that we have a strong family history of ASD in my side of the family, as well as Dyslexia. All of my boys show traits, but they cope in greatly differing ways. One is at Uni, recieving great support and doing well, one is in mainstream School and is equally well supported. My other two have greater difficulties and need more intensive support at home with everyday living and in their college environment. The way we manage is to take each day at a time. The plus side; if you can call it that, of being on the spectrum is that you can fully appreciate the angst that your children go through and the chances are you, with your condition, will be better able to support your daughter.

    After my sons diagnosis i remained in denial for years. Only recently have I brought myself to research more about the condition. A book and a person whom I've found informative is Tony Attwood complete guide asperger's syndrome. He seems most informed especially with his greater insight into the female presentation of the condition, which can be much more complex. Thier are a number of videos by him on Youtube you can access for further info. Hope that's helpful. Coogybear. xx

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  • Hi,

     I have two boys diagnosed with the condition and I've also learned that we have a strong family history of ASD in my side of the family, as well as Dyslexia. All of my boys show traits, but they cope in greatly differing ways. One is at Uni, recieving great support and doing well, one is in mainstream School and is equally well supported. My other two have greater difficulties and need more intensive support at home with everyday living and in their college environment. The way we manage is to take each day at a time. The plus side; if you can call it that, of being on the spectrum is that you can fully appreciate the angst that your children go through and the chances are you, with your condition, will be better able to support your daughter.

    After my sons diagnosis i remained in denial for years. Only recently have I brought myself to research more about the condition. A book and a person whom I've found informative is Tony Attwood complete guide asperger's syndrome. He seems most informed especially with his greater insight into the female presentation of the condition, which can be much more complex. Thier are a number of videos by him on Youtube you can access for further info. Hope that's helpful. Coogybear. xx

Children
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