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Hi from mum of 13 yr old girl recently diagnosed

misskittykat

Hi

My 13 yr old daughter finally got a diagnosis of having an Autistic Spectrum Disorder in february though I have known for a few years that it was likely.  Unfortunately, it took a move from one end of the country to another to actually get a decent paediatric consultant due to my daughters exemplary behaviour at her previous schools.  

The school move was disatrous and she now no longer goes to school.  She moved from a small caring high school to one that was huge in comparison with little pastoral care.  Unfortunately, as we now live in Dorset, it is the only school without crossing the county borderline or travelling for an hour each way to the next school in Dorset.  She is currently getting some tuition with the local learning centre but because of her high anxiety and acute sensory processing disorder, she can't go there as its full of naughty children!

She's always been above the border line for a statement on her learning disability (she's been on school action plus since she was 7) so I've never considered a 'special' school (are they still called that?) but her mental health has detiariated so much recently that I feel it would be the best option for her.  Has anyone got any thoughts on this?  

Also, because of her sensory issues, I'm finding the normal teenage stuff very difficult - she won't wear a bra and sanitary protection is a huge issue.  The OT has tried to help but at the end of the day, my daughter really does refuse to wear either for more than 30 minutes!  

I think I may have done rather a long introduction but I'd be grateful to hear from other mums that have been through or are going through similar.

Parents

  • Hi everyone, my daughter started with epilepsy when she was 9 and her seizures are well controlled. She has been at secondary school for just 8 months now. My daughter has never had any real close friends and cried a lot at primary school as she was always getting picked on, constantly!. I thought that things would change when she got to secondary school but they havn't. She is highly intelligent but she is lacking in social skills. She doesn't really understand jokes and takes things literally all the time. She has always come out with silly staements but i suppose i just got used to her being like that until a friend of mine mentioned Aspergers and when i read up on it everything made sense to me. I took sodium valproate when i was carrying her for my epilepsy. It took her a long time to walk. She had poor co-ordination. I think we tied her shoe laces until she was 8. She is tired all the time. She is always telling the teachers on her school friends that they have done this or done that and then they just don't warm to her, but in her eyes they are being mean, she doesn't tell the difference with kids being kids if you know what i mean. She talks in a very monotone voice, is totally unorganized, just leaves everything lying everywhere but she isn't naughty just in her own world. She looks about 17 and she is only 12. She put an unopened tin of soup in the microwave to cook. The school have decided to refer her for testing and her paediatrician has wrote a letter recommending the school to refer her as she always thought that my daughter seemed a little bit different and when i told her my concerns she could see that that would make sense.

    I would be grateful for anyones views or advice

    Thank you

Reply

  • Hi everyone, my daughter started with epilepsy when she was 9 and her seizures are well controlled. She has been at secondary school for just 8 months now. My daughter has never had any real close friends and cried a lot at primary school as she was always getting picked on, constantly!. I thought that things would change when she got to secondary school but they havn't. She is highly intelligent but she is lacking in social skills. She doesn't really understand jokes and takes things literally all the time. She has always come out with silly staements but i suppose i just got used to her being like that until a friend of mine mentioned Aspergers and when i read up on it everything made sense to me. I took sodium valproate when i was carrying her for my epilepsy. It took her a long time to walk. She had poor co-ordination. I think we tied her shoe laces until she was 8. She is tired all the time. She is always telling the teachers on her school friends that they have done this or done that and then they just don't warm to her, but in her eyes they are being mean, she doesn't tell the difference with kids being kids if you know what i mean. She talks in a very monotone voice, is totally unorganized, just leaves everything lying everywhere but she isn't naughty just in her own world. She looks about 17 and she is only 12. She put an unopened tin of soup in the microwave to cook. The school have decided to refer her for testing and her paediatrician has wrote a letter recommending the school to refer her as she always thought that my daughter seemed a little bit different and when i told her my concerns she could see that that would make sense.

    I would be grateful for anyones views or advice

    Thank you

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