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Hi from mum of 13 yr old girl recently diagnosed

misskittykat

Hi

My 13 yr old daughter finally got a diagnosis of having an Autistic Spectrum Disorder in february though I have known for a few years that it was likely.  Unfortunately, it took a move from one end of the country to another to actually get a decent paediatric consultant due to my daughters exemplary behaviour at her previous schools.  

The school move was disatrous and she now no longer goes to school.  She moved from a small caring high school to one that was huge in comparison with little pastoral care.  Unfortunately, as we now live in Dorset, it is the only school without crossing the county borderline or travelling for an hour each way to the next school in Dorset.  She is currently getting some tuition with the local learning centre but because of her high anxiety and acute sensory processing disorder, she can't go there as its full of naughty children!

She's always been above the border line for a statement on her learning disability (she's been on school action plus since she was 7) so I've never considered a 'special' school (are they still called that?) but her mental health has detiariated so much recently that I feel it would be the best option for her.  Has anyone got any thoughts on this?  

Also, because of her sensory issues, I'm finding the normal teenage stuff very difficult - she won't wear a bra and sanitary protection is a huge issue.  The OT has tried to help but at the end of the day, my daughter really does refuse to wear either for more than 30 minutes!  

I think I may have done rather a long introduction but I'd be grateful to hear from other mums that have been through or are going through similar.

Parents

  • Thanks Pumpkin.  It is something I've considered however I wanted to give her body time to get into a regular pattern before we start to mess about with it.  She's also currently taking medication to help with the panic attacks so I thought it best to only do one thing at a time.  Because she's not at school at the moment, we can deal with the issue of needing to use the toilet frequently.

    School have been a bit too laid back by it all which I think has led to the current situation.  She started two terms into Y7, I told them what she needed, the previous school told them what she needed (and also told me they didn't think it was the right school for her!) but they just ignored us and threw her in at the deep end to see how she would cope.  I know, at the time, she didn't have her diagnosis but they knew it was likely.  I've just done my letter to the SEN department to ask for a statement.  I can't wait for school to do it because the SENCo has been off since Christmas and I've heard on the grapevine, isn't coming back.  

Reply

  • Thanks Pumpkin.  It is something I've considered however I wanted to give her body time to get into a regular pattern before we start to mess about with it.  She's also currently taking medication to help with the panic attacks so I thought it best to only do one thing at a time.  Because she's not at school at the moment, we can deal with the issue of needing to use the toilet frequently.

    School have been a bit too laid back by it all which I think has led to the current situation.  She started two terms into Y7, I told them what she needed, the previous school told them what she needed (and also told me they didn't think it was the right school for her!) but they just ignored us and threw her in at the deep end to see how she would cope.  I know, at the time, she didn't have her diagnosis but they knew it was likely.  I've just done my letter to the SEN department to ask for a statement.  I can't wait for school to do it because the SENCo has been off since Christmas and I've heard on the grapevine, isn't coming back.  

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