Hi from mum of 13 yr old girl recently diagnosed

Hi

My 13 yr old daughter finally got a diagnosis of having an Autistic Spectrum Disorder in february though I have known for a few years that it was likely.  Unfortunately, it took a move from one end of the country to another to actually get a decent paediatric consultant due to my daughters exemplary behaviour at her previous schools.  

The school move was disatrous and she now no longer goes to school.  She moved from a small caring high school to one that was huge in comparison with little pastoral care.  Unfortunately, as we now live in Dorset, it is the only school without crossing the county borderline or travelling for an hour each way to the next school in Dorset.  She is currently getting some tuition with the local learning centre but because of her high anxiety and acute sensory processing disorder, she can't go there as its full of naughty children!

She's always been above the border line for a statement on her learning disability (she's been on school action plus since she was 7) so I've never considered a 'special' school (are they still called that?) but her mental health has detiariated so much recently that I feel it would be the best option for her.  Has anyone got any thoughts on this?  

Also, because of her sensory issues, I'm finding the normal teenage stuff very difficult - she won't wear a bra and sanitary protection is a huge issue.  The OT has tried to help but at the end of the day, my daughter really does refuse to wear either for more than 30 minutes!  

I think I may have done rather a long introduction but I'd be grateful to hear from other mums that have been through or are going through similar.

Parents
  • Hi my daughter is 13 and has just been diagonised with HFA she is struggling with her periods she is quiet happy to wear santuary protection but only certain types she dose not like the ones with wings or the value ones. 

    She cannot stand the mess and it is a difficult week. Is your daughter taking any medication? My doctor has recommended the pill I am taking her back this week to have another talk because I think this may be the best option for my daughter.

    My daughter is in school and we have caff meetings with around 10 professionals including a family worker, parent partnership, exheadteacher my youngets daughter's TA, our practioner, youth offender worker, school nurse and my daughters head of year the next meeting a statment of educational needs is being discussed. I am hoping this will help. 

    I wish you all the best at this difficult time.

Reply
  • Hi my daughter is 13 and has just been diagonised with HFA she is struggling with her periods she is quiet happy to wear santuary protection but only certain types she dose not like the ones with wings or the value ones. 

    She cannot stand the mess and it is a difficult week. Is your daughter taking any medication? My doctor has recommended the pill I am taking her back this week to have another talk because I think this may be the best option for my daughter.

    My daughter is in school and we have caff meetings with around 10 professionals including a family worker, parent partnership, exheadteacher my youngets daughter's TA, our practioner, youth offender worker, school nurse and my daughters head of year the next meeting a statment of educational needs is being discussed. I am hoping this will help. 

    I wish you all the best at this difficult time.

Children
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