• Replies 9 replies
  • Subscribers 68 subscribers
  • Views 1207 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Hi from mum of 13 yr old girl recently diagnosed

misskittykat

Hi

My 13 yr old daughter finally got a diagnosis of having an Autistic Spectrum Disorder in february though I have known for a few years that it was likely.  Unfortunately, it took a move from one end of the country to another to actually get a decent paediatric consultant due to my daughters exemplary behaviour at her previous schools.  

The school move was disatrous and she now no longer goes to school.  She moved from a small caring high school to one that was huge in comparison with little pastoral care.  Unfortunately, as we now live in Dorset, it is the only school without crossing the county borderline or travelling for an hour each way to the next school in Dorset.  She is currently getting some tuition with the local learning centre but because of her high anxiety and acute sensory processing disorder, she can't go there as its full of naughty children!

She's always been above the border line for a statement on her learning disability (she's been on school action plus since she was 7) so I've never considered a 'special' school (are they still called that?) but her mental health has detiariated so much recently that I feel it would be the best option for her.  Has anyone got any thoughts on this?  

Also, because of her sensory issues, I'm finding the normal teenage stuff very difficult - she won't wear a bra and sanitary protection is a huge issue.  The OT has tried to help but at the end of the day, my daughter really does refuse to wear either for more than 30 minutes!  

I think I may have done rather a long introduction but I'd be grateful to hear from other mums that have been through or are going through similar.

Parents

  • I agree about the ignorance around high functioning girls with ASD.  We were lucky that the primary and her first high school were brilliant and gave her all the help she would have had if she'd got the diagnosis earlier but her current school weren't the slightest bit interested in our comments on how she was coping until she completely refused to go to school.  In a way, it has been the best thing she could have done.

    Thanks for the info on statements (though I know this is changing soon) as I'd asked someone if emotional behaviour made a difference and they said they'd check and get back to me but I've heard little since the Senco went off sick in January.  The one good thing the school did do was encourage me to apply for dla which I did and has been a godsend.

    I've tried crop tops (she will wear one for a short amount of time in the house as long as she doesn't sit down because then it rides up) but she is very intolerant.  I've tried all sorts of sanitary protection.  She doesn't like the thin ones, small ones or ones with wings (I've even cut them off!) but I did have some success with the very basic type last month if only for a few hours.  The problem is, they move as well as feel odd to her.  I'm thinking of trying an old fashioned Dr White's belt next time.

    What's a PP?  

    Thanks for the links, I'll have a look when she's not hovering!

Reply

  • I agree about the ignorance around high functioning girls with ASD.  We were lucky that the primary and her first high school were brilliant and gave her all the help she would have had if she'd got the diagnosis earlier but her current school weren't the slightest bit interested in our comments on how she was coping until she completely refused to go to school.  In a way, it has been the best thing she could have done.

    Thanks for the info on statements (though I know this is changing soon) as I'd asked someone if emotional behaviour made a difference and they said they'd check and get back to me but I've heard little since the Senco went off sick in January.  The one good thing the school did do was encourage me to apply for dla which I did and has been a godsend.

    I've tried crop tops (she will wear one for a short amount of time in the house as long as she doesn't sit down because then it rides up) but she is very intolerant.  I've tried all sorts of sanitary protection.  She doesn't like the thin ones, small ones or ones with wings (I've even cut them off!) but I did have some success with the very basic type last month if only for a few hours.  The problem is, they move as well as feel odd to her.  I'm thinking of trying an old fashioned Dr White's belt next time.

    What's a PP?  

    Thanks for the links, I'll have a look when she's not hovering!

Children
No Data