Help please!

Hello all, 

We are two third year undergraduate BSc psychology students at Swansea University. We are currently collecting data for our joint final year project, which we have chosen to focus around the parents experience of the diagnosis of ASD. The survey responses are kept completely anonymous has gained ethical approval from the ethics committee at Swansea University.

We are looking for parents with at least one child on the ASD spectrum to fill out a simple online questionnaire on their own reactions to, and experiences of, their childs diagnosis.

The aim of the research is to gain insight into the parent's reactions to diagnosis, highlighting problem areas and hopes to improve the future diagnostic process.

This project is a huge part of our overall grades, so we hope to create a brilliant piece of research which will in turn improve the parental experience of the diagnostic process!

Here is the link to the survey: [linked removed by moderator]

Many thanks for your help, it is hugely appreciated Smile 

Ashleigh & Zoe

Parents
  • In answer to Hotel California's question, Universities should prohibit this from happening. The trouble is Health Science departments seem to be a law unto themselves.

    Swansea University has quite thorough policies on research ethics - here's one for Computer Science postgraduates, but similar requirements are imposed on undergraduate projects, just they may not get a web page www.swan.ac.uk/.../ethics.html

    The problem with universities is they are "umbrella" organisations - there may be university wide policies but individual schools and faculties may differ on the grounds of different research needs, and these practices are peer reviewed by other Health Science departments rather than by a university.

    Nevertheless it is difficult to comprehend why Health Science departments (Nursing, Midwifery, Occupational Therapy, Psychology and Psychiatry etc) are so lax with undergraduate dissertations.

    However you would have to access the corpus of Health Science or related departments across universities, rather than individual universities, to stop the abuse.

    Because undergraduate projects are so numerous, data gathering needs to be controlled as otherwise they can become too numerous. Local authorities endure large numbers of student enquiries every year, which supposedly they should answer, but many LAs, unless the question is clearly set out, don't answer a lot of these enquiries, because there really are just too many.

    It boils down to bad supervision. The lecturer heading up student projects, and the lecturer acting as superviser should both guide students away from bad practice. This sort of thing is down to lazy attitudes amongst the lecturers concerned.

    I would otherwise have expected Swansea University to have precautions in place to stop this happening.

    And as Hotel California points out, this is imposing on what is supposed to be a safe place for people to seek help. Websites such as this shouldn't be used as a quarry for student undergraduate projects.

Reply
  • In answer to Hotel California's question, Universities should prohibit this from happening. The trouble is Health Science departments seem to be a law unto themselves.

    Swansea University has quite thorough policies on research ethics - here's one for Computer Science postgraduates, but similar requirements are imposed on undergraduate projects, just they may not get a web page www.swan.ac.uk/.../ethics.html

    The problem with universities is they are "umbrella" organisations - there may be university wide policies but individual schools and faculties may differ on the grounds of different research needs, and these practices are peer reviewed by other Health Science departments rather than by a university.

    Nevertheless it is difficult to comprehend why Health Science departments (Nursing, Midwifery, Occupational Therapy, Psychology and Psychiatry etc) are so lax with undergraduate dissertations.

    However you would have to access the corpus of Health Science or related departments across universities, rather than individual universities, to stop the abuse.

    Because undergraduate projects are so numerous, data gathering needs to be controlled as otherwise they can become too numerous. Local authorities endure large numbers of student enquiries every year, which supposedly they should answer, but many LAs, unless the question is clearly set out, don't answer a lot of these enquiries, because there really are just too many.

    It boils down to bad supervision. The lecturer heading up student projects, and the lecturer acting as superviser should both guide students away from bad practice. This sort of thing is down to lazy attitudes amongst the lecturers concerned.

    I would otherwise have expected Swansea University to have precautions in place to stop this happening.

    And as Hotel California points out, this is imposing on what is supposed to be a safe place for people to seek help. Websites such as this shouldn't be used as a quarry for student undergraduate projects.

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