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new to site

bubbles2bb

Hi

My name is Jo, I have just joined this site, I am a mother to an almost 5 year old boy with learning difficulties and autism (diangosed july 2013), he is non verbal, with very limited receptive language, in nappies, unable to self feed etc etc. However, our main concern is his sleeping - this has been a problem for over two years, but just gets worse, it is hell, so i have joined the group to try and find other people in similar situations or to see if there was any advice out there.....

We have a new paediatrian, although her answer to everything is to keep increasing his medication, which doesnt appear to do anything, but more importantly i just dont want to keep increasing medicine, i just wondered if anyone else had tried anything else?

He currently has 2-4mg circadin in a yoghurt each night along with 3-4 mls melatonin, this used to get him to sleep and keep him asleep until 1-2am when he would be up until 4.30 am then go back off until 6.30am, we were told to re dose him if he wakes before 2am, but have given this up as it doesnt make any difference, once he is awake that is it!

He currrently goes to sleep at 19.30pm and wakes around 22 - 23 and can be up all night and go all day, i cant settle him at all in his room and if i bring him in my bed its hit or miss if he goes back to sleep, if he does, he wakes several times, i am exhausted, i work full time and so does his dad, so we take it in turns to provide cares.

I was just wondering what everyone else out there does to tackle the sleeping? Has anyone tried sleep studies?

thanks

Parents

  • Hi 

    Susie thanks, we have often thought about a trampoline as he likes to bounce so much on his bed, but doesn't know how to bounce himself on a trampoline yet, although I'm sure that will come....going to invest in one for garden when weather, if weather, ever improves!

    Thanks Sharon, I use a pill cutter and cut it probably into 8 pieces, but yes your right I know its not ideal, I really don't know how else to give, if I try to hide in food he will spit out, yoghurt has been my only success, a women at his school puts one in a jaffa cake and he eats it whole, but my son hates cakes, chocolate, biscuits (I'm sure he isn't my son sometimes :-) ) he only eats quavers as they dissolve and his main meals, which obviously would be given before pill is due. Unfortunately he also still uses a bottle, it drives me crazy but I have 20 different beakers and about 3 different cups, his OT and school teachers all try but he goes all day without drinking unless on bottle so it means pill won't go through teat!

    I have now changed his bed time from 7pm to 745 pm so will see if that makes a difference.

    Thanks also intense world, I have ordered a canopy for his bedroom and a CD with white noise, sounds etc....he does also have bubble lamp but I find he tries to pull it over when left alone with it.

    Jo

Reply

  • Hi 

    Susie thanks, we have often thought about a trampoline as he likes to bounce so much on his bed, but doesn't know how to bounce himself on a trampoline yet, although I'm sure that will come....going to invest in one for garden when weather, if weather, ever improves!

    Thanks Sharon, I use a pill cutter and cut it probably into 8 pieces, but yes your right I know its not ideal, I really don't know how else to give, if I try to hide in food he will spit out, yoghurt has been my only success, a women at his school puts one in a jaffa cake and he eats it whole, but my son hates cakes, chocolate, biscuits (I'm sure he isn't my son sometimes :-) ) he only eats quavers as they dissolve and his main meals, which obviously would be given before pill is due. Unfortunately he also still uses a bottle, it drives me crazy but I have 20 different beakers and about 3 different cups, his OT and school teachers all try but he goes all day without drinking unless on bottle so it means pill won't go through teat!

    I have now changed his bed time from 7pm to 745 pm so will see if that makes a difference.

    Thanks also intense world, I have ordered a canopy for his bedroom and a CD with white noise, sounds etc....he does also have bubble lamp but I find he tries to pull it over when left alone with it.

    Jo

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