Hi
My name is Jo, I have just joined this site, I am a mother to an almost 5 year old boy with learning difficulties and autism (diangosed july 2013), he is non verbal, with very limited receptive language, in nappies, unable to self feed etc etc. However, our main concern is his sleeping - this has been a problem for over two years, but just gets worse, it is hell, so i have joined the group to try and find other people in similar situations or to see if there was any advice out there.....
We have a new paediatrian, although her answer to everything is to keep increasing his medication, which doesnt appear to do anything, but more importantly i just dont want to keep increasing medicine, i just wondered if anyone else had tried anything else?
He currently has 2-4mg circadin in a yoghurt each night along with 3-4 mls melatonin, this used to get him to sleep and keep him asleep until 1-2am when he would be up until 4.30 am then go back off until 6.30am, we were told to re dose him if he wakes before 2am, but have given this up as it doesnt make any difference, once he is awake that is it!
He currrently goes to sleep at 19.30pm and wakes around 22 - 23 and can be up all night and go all day, i cant settle him at all in his room and if i bring him in my bed its hit or miss if he goes back to sleep, if he does, he wakes several times, i am exhausted, i work full time and so does his dad, so we take it in turns to provide cares.
I was just wondering what everyone else out there does to tackle the sleeping? Has anyone tried sleep studies?
thanks
