My Family

Hey my family consists of 2 mums a dog and a 3yr autistic child. 


We were told to come here by our paediatrician to contact  "the T-Shirt wearers"
As in other words people who have been there done that, got the t-shirt.

My son isn’t very verbal. He can only say a few select words at any given time.
Tends to echo allot. Doesn’t like change. Doesn’t Comprehend what I am saying. 
He has his challenges but I’m very proud of him for doing as well as he does.

What Tips if any do you have for coping/making life easier?

Also tips on traveling without a car would be greatly appreciated as we don’t drive and struggle with public transport as he violently meltdowns and people constantly questioning his condition.

Thank you. 

  • Hi - when my son was little he sometimes had meltdowns on buses because he didn't like that particular bus company or if there'd been subtle changes (subtle to us, glaringly obvious to him) in the design.  Does he react the same all public transport?  Just wondering.  You could try ear defenders if the noise upsets him or decent headphones if he'll accept them.  Pecs are a gd idea, then he can understand what's going to happen during his day.  I used to keep things to a minimum verbally, wdn't use 3 words where 2 wd do.  So if it was an instruction like "get your coat", we'd go together to get it + as I was saying it I'd be handing it to him.  That sort of thing.  This site is full of info via the home pg + the posts so have a look around + ask anything you want.  Sometimes keeping a diary can be helpful with regard to meltdowns etc.  What was happening prior to the meltdown, sometimes you can see a pattern after a few days or wks.

  • Hi - when my son was little he sometimes had meltdowns on buses because he didn't like that particular bus company or if there'd been subtle changes (subtle to us, glaringly obvious to him) in the design.  Does he react the same all public transport?  Just wondering.  You could try ear defenders if the noise upsets him or decent headphones if he'll accept them.  Pecs are a gd idea, then he can understand what's going to happen during his day.  I used to keep things to a minimum verbally, wdn't use 3 words where 2 wd do.  So if it was an instruction like "get your coat", we'd go together to get it + as I was saying it I'd be handing it to him.  That sort of thing.  This site is full of info via the home pg + the posts so have a look around + ask anything you want.  Sometimes keeping a diary can be helpful with regard to meltdowns etc.  What was happening prior to the meltdown, sometimes you can see a pattern after a few days or wks.

  • Hi Puzzlepiece, welcome!

    Our family also consists of two mums ;)

    We also have a 18 year old daughter and 9 year old daughter living at home, the 9 year old is on the spectrum, as yet undiagnosed.

    Take care x

  • No problem, its definitely all a learning curve, if there's anything else don't hesitate to ask     its not easy at times.

  • Thank you susie I really aprciate the advice. 

    Seems that youve got it all done down.

    As for the peditrcian I found it odd aswell.

    Thanks again x

  • Hi puzzle piece , I dont think much of your paediatrition saying contact the tshirt wearers,   I take it by that he/she means people with experience of autistic children which they clearly don't have, there doesn't seem to be alot of knowledge of ASD by so called professionals.

    my daughter is 8 and was diagnosed when she was 6, she is in a mainstream school but goes to the learning centre(special needs which is in the same building) half the day so she has the best of both worlds. My daughter also echos a lot of what she hears we use PECs picture exchange communication both at home and school and it means if she's struggling with what she's trying to say that does help as she can bring me the card. That could help with your son unless you use them already.

    My daughter also doesn't like change either or noise or very busy places, we use a lot of public transport as well and my daughter can have meltdowns in public places too, I just concentrate on making sure she is ok and trying to distract her if I can tell she is going to have a meltdown. I do also avoid going to shops at busy times as it's not as hard for her then.

    As for people questioning his condition it's really none of their business unless of course you want to explain, there's too many ignorant people out there and I've had experience of people tut tutting at my daughter I try not to let it get to me as it's their problem. 

    Hope this helps some.