• Replies 8 replies
  • Subscribers 68 subscribers
  • Views 1144 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

hi from a confused mum

disease

Good evening I have joined today after a very caring mum sent me the link. My 8 year old daughter was diagnosed last Monday we have been battling with her behaviour for around 2 years and only asked for help when she started picking holes in her skin earlier this year. I have had such a strong reaction to her diagnosis which I can't quite understand,  I knew there was a possibility but its hit me like a ton of bricks turning me to emotional jelly.  I know nothing about Apergers I feel lost and helpless.  

Idon't really know what I expect from posting here xxx

Parents

  • Sporty mum said:
    Don't know what your experience is but I got a 10 minute appointment and a brown envelope with various bits of paper and away we go - come back in 3 months!

    Many areas seem to never get told to come back from what I read.  When my daughter was diagnosed, they gave me 2 leaflets (which were offered because of questions I asked that triggered them remembering) and that was it.  Never another appointment or offer of help.  I was asking for help with her anxiety from CAMHS, ignored (despite involving other agencies to push), asking for an ADHD assessment which has had to involve other agencies and have still not been confirmed anything in writing even though I made the request months ago (October) and despite verbal assurances of action.  You are lucky to get a follow-up.

Reply

  • Sporty mum said:
    Don't know what your experience is but I got a 10 minute appointment and a brown envelope with various bits of paper and away we go - come back in 3 months!

    Many areas seem to never get told to come back from what I read.  When my daughter was diagnosed, they gave me 2 leaflets (which were offered because of questions I asked that triggered them remembering) and that was it.  Never another appointment or offer of help.  I was asking for help with her anxiety from CAMHS, ignored (despite involving other agencies to push), asking for an ADHD assessment which has had to involve other agencies and have still not been confirmed anything in writing even though I made the request months ago (October) and despite verbal assurances of action.  You are lucky to get a follow-up.

Children
No Data