Published on 12, July, 2020
I was diagnosed with autism at very young age
My mum never told me and I found out through a psychiatrist when I was on a ward about my Autism when I was 17
Ive just moved doctors and I have an Autism gp passport I sent in. The doctor had a phone appointment with me and said they can't find any record of my Autism. My old doctors was trying to put a case forward for ASD specific counselling - which already has a long wait list. I’m really worried now as they don’t have my diagnosis so my referral might stop but I’ve had support through college and university for my autism so I’m really lost what to do - I can’t wait two years to get diagnosed a second time and I don’t speak to my close family who live back in my childhood city.
Has anyone got any words of advice for a 'lost diagnosis'. I'm really getting worked up
Could you ask your GP to get in touch with the hospital where you were an inpatient when you were told about your diagnosis? Presumably they will have some records unless it was too long ago.
If your old doctors were accepting of your diagnosis your health records should record this I would have thought.
ASD specific counselling is available in very few areas of the UK I believe. If you have moved from one health authority area to another they will probably take you off the waiting list and you may find there is nothing similar available in your new area.
It's a postcode lottery and the current healthcare system rarely works well for autistic people